My husband has been fighting this vile disease for just over a year now, and has had little success with any treatment. He is now on Votrient and we are hopeful that this will work, but we still have a few weeks until we know the impact this treatment is having. We have done Dox/Ifos, Trabectadin/Yolondis, then stopped for radiation to the largest tumor on his lung as it was impacting his esophagus, and then a Phase 1 Clinical Trial using T-cell immunotherapy, which showed mixed results (some tumors responded, some did not). We are waiting to see what the next step in the clinical trial could potentially be (it's on hold right now), and as mentioned, we are Votrient with hopes it will slow things down. One other thing to note is we continue to play a game of "whack a mole" with mets on his brain. He has had two gamma knife procedures, and upon check up yesterday, there is another met that needs to be treated yet again with gamma knife. Lots more history to go through here, but I'll get to the point...I am not sure if we are being aggressive enough and am considering having another doctor take a look, but am not sure when the right time is nor the right place. We are being treated at a leading Sarcoma referral center here in Seattle, Fred Hutchinson/Seattle Care Alliance, so I am not sure if traveling somewhere like Sloan Kettering or MD Anderson is the right thing to do. I'd appreciate guidance and any insights anyone can provide to me to help with this decision. I know that getting a second opinion is always a good thing, and will do ANYTHING that will help stop this disease. That said, I don't think he wants to spend time traveling etc. to hear the same prognosis.
We are nowhere near done fighting but do feel like we are running out of options.
Thanks in advance for your responses!