I have been on Votrient since August 2012 and I just wanted to share my experience and perhaps the conclusion of my being on this drug. That wonderful little pill which seemed much easier and uncomplicated than getting infusions has cost me a great deal of my quality of life than any other drug I have ever been on, which have included 10 variety of chemo regimens for sarcomas in the past 21 years. I now see myself in a very difficult cross road as my options are extremely limited. I was admitted into the hospital last week because I was experiencing chest pain. I've always had shortness of breath due to the radiation and lung surgeries, but I never had my chest to feel tight and heavy. I complained about this for months, but was told it was probably my lungs since I have severe restrictive lung disease. When I was admitted to the hospital, I took heart-related tests, as the Drs. thought I was having or perhaps had a heart attack. The tests proved to be negative, but what they did find that was my ejection fraction was low (34%). Normal is 55% and above. This is the percentage of blood leaving the heart each time it contracts.
Some other side effects I have experienced on this drug have included: loss of appetite, weight loss, diarrhea, lightning of the skin and hair turning white all over my body.
What disappoints me more than ever with having this disease is getting the medical professionals to listen to my concerns and not just see them as complaints and to take them seriously. You would think if my Dr. is administering this drug to her patients she should at least be familiar with the serious side effects of this drug, and my concern of my chest being tight and heavy should have triggered some sort of investigation on her part. Once again, I find myself in peril. I've been in this position so many times and I pray for a good outcome.
The lesson learned for me here is to pay attention to your drugs serious side effects and demand some sort of action if you find yourself experiencing them. We know our bodies and we should always follow our instincts. I knew something wasn't right, and every Dr. I told about what I was feeling did not connect the dots!
It's time for me to move on and see what's next. I'm doing my research to see how I can help counteract my new condition as naturally as possible. What's more important at this point is to see what therapies are available for me in order to keep my tumors stable and prevent more metastases.
Blessings to you all and have a beautiful Christmas!