Thank you all so much for your answers. I realize every case is different and every Dr. is different. I don't remember Gary, are you in remission with no recurrence? And when you say after the rounds of chemo you had good period of "normal life". Can you give me an idea of the time frames? How long in chemo and how long well? And now are you back in chemo? Or going back for more?
Luke I know this is your first occurence. So you are almost a year, I am so sorry for your agony in surgery, I hope you are recovered. What is next for you?
Sorry for all the questions, one thing I am not used to is the "waiting" for all the answers. Before switching to MD Andereson in Houston I was at U of F, Shands in Gainesville, all my test results I got the same day, and the options within a day or two.
I also made the mistake of believing that I had this beat because of the misinformation I received or I should say, I only got PART of the information, and I blame myself for that too. I was so nieve. I thought because I was NEVER sick in my life and I was 43 I was good as gold. I had just passed a life insurance policy test 6 months prior with glowing colors. Than to have a rare disease as we do and not follow up ON MY ON, and just listen to the Dr's. I am not saying they are not right ` we are all human, but I feel like I am 5 years behind the 8 ball and don't really feel in control of a decent "input on my own fate" because when all of you speak of all the chemo treatments etc it sounds like greek to me.
I was told after the 2 year mark I was good to go. Not knowing a thing about "distant recurrence". I seem to have a classic case of that, I was 4 years and 7 months in remission. The 5 year mark is the time distant recurrence happens and most of the time it comes back in the lung.
I learned a VERY VALUABLE lesson in all this, hopefully I learned it early enough.
YOU must keep a CLOSER eye on your health than anyone else! I knew my body was starting to show signs of SOMETHING wrong. I had pain in my left shoulder right above my elbow, which if looked up is one of the signs of lung cancer.
I know this also veared off to another direction, but I am glad I could vent and people actually "GET" what I am talking about.