My food intake had gotten so bad, I lost 20 pounds to a mere 100 pounds...no muscles at all. I tried an anti-depressant which a Dr. gave me to stimulate my appetite, but it made me feel so worn out, I just could not take it. I tried putting myself on a schedule, but the food taste so horrible, I could not eat the meals prepared because I felt nauseous. I got desperate because I was approaching malnutrition and food is our strength. I am now successfully eating much better because of the medical marijuana. I don't smoke, so I take a medical cannabis lozenge that has a high level of CBD and it doesn't make me high. The good news is I have an appetite and I get so hungry, it doesn't matter what the food taste like.
I hope I can continue to take the Votrient. I have had so many chemo regimens, surgeries and radiation to my lungs and to the upper extremities, I am now on oxygen because I have developed severe restrictive lung disease. The Votrient has also caused my heart rate to increase to the point where I am out of breath and can barely catch my breath at times. I had to see a cardiologist regarding the heart, so I'm doing testing to see if there is possible heart damage.
Going forward, I'm going to rejoice that God wakes me up everyday and I have a means to still have a quality of life where I can enjoy some of the things I love. I accept where I am in life and I'm looking at ways to get stronger. It's a challenge and I just have to be patient. 22 years and still fighting!