My husband has a very large tumour burst in his abdomen a year ago, it was removed but as it had burst the cells obviously spread and 6 months later he had 3 more appear in the abdominal cavity. It was originally called myofibroblastic sarcoma. He started chemo on doxirubicin and ifosfomide, of which the doxirubicin was dropped two months ago. The two of the tumours have shrunk and one disappeared completely, although another one appeared on his liver, this was contained. The last chemo session is scheduled for next Friday.
However, another tumour was shown during a routine scan on the outside abdominal wall, which was removed by simple surgery, with all margins clear. The biopsy has just come back and shows it is an aggressive synovial sarcoma and may need different treatment after the results of another scan next week.
We were blown out of the water by this news and everything had looked so good and positive. Reading about SS it seems that these sarcomas are usually in joints and in much younger people (my husband is 67), but having researched about the previous diagnosed sarcomas, I am not finding much to help me on the internet to explain this occurrence. Was the primary tumour misdiagnosed, how come a different type of sarcoma has occurred.... all these questions are running around in my mind. Now the tumour has metastasied is this likely to be more life threatening?
I would be so grateful if anyone out there could help please? Thanks so much.
(PS. we live in the UK)