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Synovial Sarcoma - Online Support Group

Should I do chemo?


#21

I had a tumour on my foot. It was 4 cm. I did not have any mets at the time of diagnosis. However I did an amputation below knee and also did 4 rounds of chemo (Dexarubicin and Ifosfamide). Doctors advised that the latest reaserches have shown that chemo has been working well for Synovial Sarcoma.

The chemo days were pretty bad, I was always tired and weak. But once its over…its OVER. I am pretty healthy now. Yes I did loose my hair. But its now on its way coming back. I believe PREVENTION IS BETTER THAN CURE.


#22

Hello Joe
Could you please elaborate a bit on your SS. I read that you had in neck. What was your grade and tumor size?
I’m keen as my child is been diagnosed with it and is doing RT now.
Mito