Will you be seeing an oncologist at Sloan Kettering?
As Jim said there are different types of chemo. Since you never had chemo, they may offer the conventional AIM (adriamycin also called doxorubicin, ifosfamide, mesna) for a start unless they have a trial that fits your need. I would ask about TH-302 and whether doing AIM now would prevent you from doing TH-302 later. The drug may be approved at the end of the year to be given in combination with doxuribicin but doxuribicin cannot be given for more than a given number of cycles because of heart toxicity. When TH-302 gets approved (if it does), will they be allowed to give it alone?
So it may be more appropriate to start with high dose ifosfamide since it tends to be effective on synovial sarcoma. Also, you may want to get more than one opinion just because different places offer different trials and they have an interest in putting you in their own trial and not a competitor's trial. Also keep in mind that most trials don't work. But then it's like playing lottery, you could get a miracle drug...
You can check for trials here:
In the search box, you would put either "synovial sarcoma", "soft tissue sarcoma" or "solid tumor".
Starting chemo now will give you time to search for other options.
I just returned from an appointment with Dr. Bains.
He was very kind. He drained the fluid from my lung. But unfortunately he said that surgery is not a possibility in my case since there are multiple nodules/masses. I got an appointment of the chemo oncologist for this Friday.
Do you guys have any suggestion on going ahead with chemo. Since this is in an advanced stage will the side effects of chemo weaken my immune system and cause other illness.
I am not even sure what I am trying to ask. I am confused and not sure about what I should/should not do.