Hey everyone. Thought I'd introduce myself a little bit and join in the talking :)
I've been so glad to read your stories and advice as my husband begins his fight.His tumor (in the center of his thigh muscle) has long 'fingers' which would make immediate removal difficult, so he is beginning chemo and radiation to hopefully shrink that evil bastard! He got on a clinical trial (ARST1321) which combines doxorubicin, ifosfamide and pazopanib. It's a pediatric trial (he just made the cutoff at 29) so it's easy to keep things in perspective here on the pediatric floor. The children here are brave and funny and beautiful.
Anyway, he started his first round of chemo this past weekend, and he's still in the hospital until Wednesday. His treatment center is 2.5 hours away, so I hate that I'm not able to be there daily (though I know the rest is probably good for him- I always have our three young children in tow and they are draining!!)
I'm wondering if anyone has had positive results with pazopanib, I know the results vary. I'm almost afraid to ask, but more afraid to know so little :)