I'm newly diagnosed with SS, primary in my left lung (both lobes....lucky me), and metastasis in the hilar lamph nodes. Currently recovering from my third round of chemo (doxorubicin and ifosfamide). I'm fortunate to have wonderful meds that keep nausea away, but am still currently working/learning what to do for all the other symptoms that accompany chemo.
Next week we will scan again to see if the chemo is helping me achieve clear margins for the hilar lymph nodes. I believe I currently have clear margins for my left lung, but it will be because they can take the whole lung out. If the chemo is working, I'll have three more rounds of this chemo regimine, then surgery. Hopefully that will be when I am clear, and return to my normal life.
I was thrilled to see that there are survivors of this specific cancer, as apparently we are a rare group! I look forward to learning more tips for dealing with treatment from current survivors as well as our veteran peers!