Hey guys! I hope everyone’s doing as best as they can be during such a crappy time. My drs seem pretty hopeful that I will be cured from this but from what I read online it doesn’t seem like it. I’ll give you cliff notes this time!
-7 cm tumor in my neck/head
-surfaced the bone of neck skull and almost spine
- they got out 85% no clean margins but scraped off bone and got it off everything.
- I am at ucla and have finished 1 round of chemo
- I also just finished 37 radiation treatments
- still have 4 more rounds of chemo.
Now ik that without clean margins things look terrible yet ucla seems pretty positive. I’ve been given a 50-80% chance of survival. So far the cancer has not spread. And I’ve been told many times that I am lucky it grew in my head. But this luck or good survival rate doesn’t make sense to me since everything I read online says if it surfaced bone or without clean margins you’re screwed. I have some of the best drs in the world who are extremely blunt about everything. So I was just curious what u guys thought.