My younger brother, ssarm here, lost his fight with SS.
More than five years after his tumour was first detected and resected in his hand, and more than 2.5 years after lung metastasis.
He tried AIM, high dose Ifosofomide, Ayurvedic treatments, which we believe gave him extension and good quality of life, relatively, Votrient from April '16 to Sep '16, which gave excellent response initially, before stopping working.
He deteriorated rapidly in the last two months and resorted to Yondelis in Feb '17. In the very next week, he experienced fever and SOB, and was in Hospital , conscious and talked until the afternoon of 28th Feb, and breathed his last on 1st March 2017, just after 4 PM.
I could not believe it for a day, but now i know he fought bravely, with great fortitude, refused to give up until the last moment.
My family is devastated, and yet to come to terms with the loss.
Don’t know what else to say, but yes, keep fighting.