I previously posted a topic about looking for my brother who has synovial sarcoma. He's urgently looking for a surgeon or a final second opinion. Here's the post: http://www.synovialsarcomasurvivors.org/forum/topic/show?id=6300991%3ATopic%3A42601&xgs=1&xg_source=msg_share_topic
We talked to his doctor at NIH and they said there's nothing more they can do. The clinical trial and any chemo is off the table because he's just too weak. They consulted with the surgeons at NIH and at Sloan Kettering and all said surgery was not an option. The tumor in question is near a main artery and his intestine. They say he would likely not survive the surgery. His doctor is going to consult with sarcoma surgeons at Johns Hopkins and we should hear from them in the next day or two.
I'm not sure what else to do at this point. I urged his doctor to follow-up on the 5 other surgeons I found. She said this was not a good use of time because they would probably say the same thing, and we need to get him back home (Michigan) in case his symptoms get worse and he can never go home.
My brother refuses to give up though. He wants to keep looking for surgeons, and he's willing to try surgery even if there's a low chance of success. He's as stubborn and resilient as anyone I've ever met.
What do I tell him? What do I do?