Today marks day one for me on this site. I’m grateful to have found it. It’s nice to see so many others when I felt like an oddity. So here’s my story…
I developed some swelling in my ankle during my second pregnancy. Everyone I mentioned it to only contributed it to the pregnancy and the fact that I was on my feet all day while working. After delivery the swelling never went away. I was tested for a blood clot and when that came back negative I was told it was probably a cyst. The swelling eventually turned into a visible lump so I saw another doctor. An MRI was ordered and SURPRISE…you have Synovial Sarcoma!
After four MRI’s, CT Scans, a biopsy, and tons of labs it has been determined that it has not spread to my lungs (yet). The tumor is greater than 5cm, lobulated, and comprised of high grade cells. Recommended course of treatment is chemo, possible radiation, and amputation. I’m hoping that the chemo will reduce the odds of amputation but it doesn’t look great.
So…chemo should be starting this next week (YAY ME). Looks like 6-8 rounds are in order. Chemo will be administered 24hrs a day for 5 days in 21 day cycles. I’ve already placed a wig order (gonna try a new color or two) and I’m working on finding some help for my infant and 5yr old. Very curious how everyone who underwent chemo reacted. My doc makes it sound like I’ll be incapacitated for the next 4 months. I hoping that’s not the case!! I know it’s going to suck something terrible but I hope I can still manage to care for my kids.
Thanks for welcoming me and I look forward to chatting with you all.