Synovial Sarcoma - Online Support Group

Has anyone been through the genetically modified T-Cell trial?


The trial sounds interesting indeed. Although there is no study that shows this particular drug may have benefits for synovial sarcoma, there are studies that looked at the other similar drug mentioned, 5-aza-2’-deoxycytidine:

Was this trial suggested by NIH?
Did they check if you still have the engineered T-cells in your blood? What do they think about checkpoint inhibitors in your case?


Hi Jim,
I’m sorry that the t-cell trial didn’t work. It’s such a roller coaster ride with hard climbs and scary hills!
I’ve thought about the point when I’m thinking quality vs quantity. It’s a tough one. I’m praying for you to make the right decision for you and your family. I’m still hoping there is a miracle discovery out there for you and me.