The people are incredible!
Arrived at NIH on Monday the 16th. I started out Monday with blood panels and an EKG - Nothing exciting. I wondered the halls to review the artwork which is fairly impressive.
Tuesday contained CT scans of my lungs and an MRI of my brain. Good new, I have one. They allowed me to photograph the screen which I shared with my wife via text: "See there it is in Black & White - I do have a brain once you get past my thick skull". Thankfully it did not spread to my brain.
I was off Votrient for 8 weeks. I was afraid that the 5 tumors would have exploded in size. To my surprise, they have not. The largest is still only 2,3 x 1.4 cm.
Wednesday they inserted my ports.
Thursday started at 7AM with fluids to prep my kidneys and bladder. I was on these fluids for 48 hours.
I got my first does of cyclophosphamide, an hour-long drip around 5pm. The second does was delivered on Friday. This was some heavy hitting chemo, and can do damage which is reason for the fluids. You have to void your bladder every two hours to avoid side effects. Also experienced heavy nausea during the treatment and for about 4 hours afterward. You'll rebound quickly once this is out of your system.
I'll be on a half-hour drip of fludarabine until next Thursday.(5 days total) By that time my immune system should be suppressed and ready for my infusion of new, genetically modified T-cells.
It's Sunday and the building is quiet. I logged a mile walk to the metra station. My wife arrives today at 3 and I want take her into town for a great meal.