I am sorry to hear about the nodules. I know it is very worrying . My daughter has nodules similar in size since her very first CT scan in August 2017. I know it is hard, there has not been a day that goes by that I don’t think about that. . They only way to fight it is to keep the same positive attitude that you had on this since the very beginning. You are are SuperGirl and since you joined the forum you have been very positive inspiration and you need to stay that way to fight this. Life is too short to waste it. I am letting my girl have as much fun as she can and you should do the same for you so you. Some people manage to live with METS for a very long time but you have to be very proactive.
There are a lot of treatments but probably your nodules are still too small for anything as well but you need to probably scan them again ASAP. I would recommend no more than 6 weeks even if you have to pay out of pocket for the scan just to make sure they are not growing rapidly. This things may have always been there but were too small for the CT Scan to pick up. Make sure they use 1.5 mm slices when they do your scans. Some places do 5 mm and that is not enough resolution.
In my daughter’s case after 6 scans they are still about the same in size so they are not recommending anything yet because they are too small for any of the treatments. I wanted to put her on Chemo right away but the 5 oncologist that saw her case in the first 3-4 months at several of the top hospitals in the nation said no. Now I am seeing just 2 oncologist to make sure I get more than one point of view. One lung Dr. wanted to open her chest wall and attempt with her hand to take a couple of the nodules that were close to the lung wall out. I decided to go against that.
Supposedly chemo is more effective when they are growing fast than when they are slow growing. Right now I don’t want to disturb the nodules and decided let my daughter enjoy her life as much as she can. For you, getting an idea if they are aggressive or not will be good to see what is the best action.
The treatments that I am aware off are (not in any specific order)
-Radiation (several types of radiation)
-Chemo with Immunotherapy (new trial at Miami I just heard a few weeks ago)
-Chemo with Votrient (fairly recent to try more than one drug at the same time)
-A Miracle from God (they do happen)
Some of the nodules shrink for a time with Chemo but my understanding is that only removal gets rid of them completely but I have seen people on this forum claim that proton beam radiation worked on a specific nodule. When on any of the radiation treatments you have to also be careful. When they radiate the body try to heal itself. So tumors that are not being radiated or don’t show in scan yet may benefit from the healing process and grow while the tumor being radiated shrinks. Therefore if you do radiation, you still want to be scanned regularly as well.
Make sure that you send your tumor from the leg for analysis. I tried foundation one but unfortunately there was not enough tumor left for them to do the analysis. That will help to determine which trials you are able to join. or if new treatments pop up the treatments may be related to a particular gene.
I hope this helps. I will pray for you as I do for my daughter and everyone else fighting this disease.