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Synovial Sarcoma - Online Support Group

Coming to an end


#1

Well gang, I have been given 4 weeks to live. We have tried everything and now it is time to prepare for the end. I have hospice already and they keep me pain free so I can enjoy my days I have left. I have a tumor pressing on my heart and as it enlarges, my heart function will decrease. I have had a wonderful life and have no regrets. I have enjoyed this site and the information I have received from everyone. Good luck to all those that continue to fight the battle!. Kim Folmar


#2

So sad to hear this Kim, keep strong to the end and we will all be there with you. From your comments above and also your blog post below it looks like you’re living life to the full and getting to a point of acceptance with this and haven’t let the cancer define or conquer you. I’m sure that you will live life to the end and I hope and pray that you have courage and quality and happy time with your friends and family. Sometimes 4 weeks can become 4 months etc. so hope to see a few more post from you yet.

Kim Folmar commented on Gary T’s blog post 'BC I… (Before Cancer I)'
BCI, I didn’t stop to appreciate the small things. I look for the good and joyful things now. The sound of my boys laughing, frogs croaking and kids playing-these things make me happy.
Jul 24


#3

Dear Kim, most likely all your friends and family will want to take some days off work to visit you. I hope you feel well enough to still enjoy their visits. I hope you still can spend a lot of quality time with your boys. I hope your life keeps being wonderful until the end. I admire your attitude in the face of adversity. Wish you the best...

Elodie


#4

This is Pete, Kim’s husband. She neither looks nor acts like a woman with just one more week to live (three of the four are already behind us) . Today she spent the whole day with friends out to lunch and shopping. She got her wheelchair on Monday and has been burning up the road since. She is pain free, full of spunk and spirit and a huge love for her family and God. We have every confidence that she will make liars out of the Doctors and outlive their expectations . Tomorrow we have a date night scheduled just my sweetheart and me (that is me in her pic without hair having shaved mine in support of the love of my life.) I thought you folks might want to know about us. Kim came into my life as a 17 year old girl and I (being at 21 a much more mature person) immediatly fell in love. We have been inseperable since that time and I don’t think that we are ready for SS to take that away. We are blessed with the type of love that most do not have. Our 18 years together have packed more love, fun and adventure in than most relationships that go 50. We are ready for 18 more should God decide to give them to us. If not, I rest easy knowing that my sweetheart is no longer without 2/3 of her lung, has no tumors, has a heart that once again operates as it should and no lymph node involvement. She will have no more ifosfomide and no more red devil and no more proton therapy. She will no longer wake up with crackling in her chest or fluid on her heart. For my girl this is a win/win. For me it will definately be a struggle. Where do I turn for unconditional love, for funny stories from work, for an ear for my off color jokes?No one else wants to hear my crap. Where to my boys turn when I am too hard on them? So as you see, I am unwilling to write her off simply because modern medicine doesn’t know how to combat a disease that has been around for a very long time. I am not in denial, I have all the funeral planned, gravesite arranged and headstone ordered. Just hoping that God will decide that it is too early to take a woman this great!


#5

Dear Pete, your tribute to your wife is beautiful! I hope she got to read it… Wishing you two the best date ever!


#6

I haven’t been on this site in a while. I wanted to tell you…YOU ROCK! I can’t imagine what you must be feeling! Your story is amazing. THANK YOU!


#7

You are both amazing.


#8

What an incredible story, You can feel the love reading these lines.

God Bless and have a wonderful journey!


#9

dearest kim my love and thoughts are with you… there are not the words… just my tears… from patricks mum


#10

Hi Gary:

I just read your blog. My prayers are with you and Kim. Synovial sucks. There are some hopeful signs in virus treatments. I wish I could convince people not to have the chemo and radiation and save them much suffering. As you can see from the many blogs they don't work. I pray that the Lord has granted Kim many good days but if not it is a win for her because where she is going there is no more pain and suffering and only pure love. I am sure she will meet my Nicholas there. God Bless you!

Synovial Mom


#11

Kim and Pete. I'm amazed and inspired by how powerful the two of you are. Thanks for the inspiration and I wish you both all the best.


#12

You guys are so amazing. Sorry to hear about your battle. My 20 year old son has been fighting this for 2 years 3 months. He had chem and rad to shrink it before surgery...had surgery with clear margins and the 4 months later spread to his left lung with removal clear margins and 3 months later now it in both lungs...did ny eso trial no luck there they grew...more surgery on has half a left lung and a couple of pieces removed from right lung..got more spot went on a trial of azd and trimsirmolimis (sp?) no luck there got more tumors....now we are back on isof


#13

I'm so sorry to hear about you and your families story. I'm hoping for you that the isof will work and help him out. Wishing you all the best.

JOE'S MOM said:

You guys are so amazing. Sorry to hear about your battle. My 20 year old son has been fighting this for 2 years 3 months. He had chem and rad to shrink it before surgery...had surgery with clear margins and the 4 months later spread to his left lung with removal clear margins and 3 months later now it in both lungs...did ny eso trial no luck there they grew...more surgery on has half a left lung and a couple of pieces removed from right lung..got more spot went on a trial of azd and trimsirmolimis (sp?) no luck there got more tumors....now we are back on isof