Dan found out on Friday that the Votrient isn't working for him anymore...well we don't think it is at least...our Dana Farber doctor wants to see the scans to be sure...he said sometimes there is an appearance of slight growth when really it is the tumor changing it's make up (??)...more information to follow I guess. The drug has been good to him and we hate that it may have stopped working only 6 months into it.
Our doctor sent us this information on a trial that might be appropriate for Dan. Has anyone heard of it?
He said there are other options as well...but surgery doesn't seem to be one. Dan's tumor is in his left lung. It appears that it has grown up and against his pericardium/heart but it is not currently impacting his heart function. VERY different from this summer when he had two horrible hospitalizations because of an enormous amount of fluid surrounding his heart. He's recovered so well from that and is even back at work several hours a week. It is devastating that we need to go back to the drawing board now.
I'm looking forward to hearing your thoughts/experiences.