My Mom had a massive and shockingly aggressive undifferentiated sarcoma. Unfortunately we didn’t have time for much research, but in hindsight, there are different things I would have done.
We had an interesting meeting with Dr. Yoon - a surgeon at MSK in New York City. He had worked on trials during his training in Boston using radiation therapy in addition to chemo pre-operatively. He maintains that radiation prior to surgical removal resulted in a significant decrease in recurrence. He said he was a black sheep at MSK for being an advocate for this, but felt strongly that the numbers were just too compelling to ignore. I wish we had done that before her first tumor was removed. Once a sarcoma comes back, it is expected that they will just keep coming back. So, eradicating the first one is important. His view is that the radiation helps to treat the margins.
I would also have had my Mom work with herbalists to compliment and help support her body through medical treatment. Namely, I would have contacted Patrick Fratellone MD RH (AHG) FIM (https://www.fratellonemedical.com/) and Lise Alschuler N.D., F.A.B.N.O. (https://www.drlise.net/)
They would have helped her get tested for chemo tolerance and also run pathology tests to try to figure out which treatments her specific tumor might respond to. They also would have monitored her overall health and worked with her to make the climate of her body as un cancer friendly as possible and keep her immune system from being obliterated by the chemo.
Lasty, when it came to chemo I would have tried photo dynamic therapy which is more directed. While my mom’s tumor was definitely taking over her body, it was the chemo (Doxorubicin) that killed her.
I am so sorry that anyone has to go through this. It is so scary and sarcomas are so elusive.
By the way, she was being treated by Dr. Schwartz at Columbia Prep. I would NOT recommend him or that place. It is archaic. Her surgeon, however, Dr. Kato, performed a miraculous extraction of her first tumor.
I much preferred MSK, but unfortunately we ran out of time.