Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.
Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
General Discussion in regards to Synovial Sarcoma
We know you have a million questions. This section is to help you answer a few. Please don’t hesitate to ask your questions though. These are short articles written by experienced SS patients on range of topics for the newly diagnosed or those in process of being diagnosed. They are not highly technical, we leave that to others nor are they intended to be all-inclusive. We will be adding more so please come back often.
Discussion about Pediatric Patients and Parent Support
Discussion of symptoms that just don't seem to fit
Discussion About the Unusual Presentation of Disease
Treatment of Synovial Sarcoma
Synovial Sarcoma Clinical Trials Discussion
Members success stories and stories of hope
Advocacy for Synovial Sarcoma
Discussions of Insurance/Work/Financial Issues and resources
If you would like to express your feelings about dealing with Synovial Sarcoma, this is the place. Need a Lift? need to Rant? This is the place.
This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives with Synovial Sarcoma. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information
Discussion of End of Life Issues
Want to recommend a doctor, therapist, or clinic? Positive review only, please.
Memories of those we have lost
Member Photos and albums
News from Bens Friends -
Events of Interest to Synovial Sarcoma Patients. Just contact a mod to have your event listed. (all postings must be approved)
Discussion about this site, its organization, how it works, and how we can improve it.
FAQ about the Synovial Sarcoma Survivors Community
Bens Friends Apps for mobile Devices