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Welcome to Synovial Sarcoma Survivors
Synovial Sarcoma Survivors is an online patient support community that is powered by BensFriends.org, a network of patient support communities for rare diseases. Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
Synovial sarcoma, also called malignant synovioma, is a rare soft tissue cancer that usually develops in the arms or legs near joints and tendons. Though most common in the limbs, it can also occur in other parts of the body, including the brain, prostate, and heart.
Join Our Supportive Community
Synovial Sarcoma Survivors is an online support community where patients and families affected by Synovial Sarcoma—a rare form of soft tissue cancer—can connect, share experiences, and find strength together. Our safe and caring space welcomes members as young as 12, offering a place for open discussion, emotional support, and trusted information.
Members of our rare cancer support community come from all walks of life. Some have strong religious faith, while others do not. Some are newly diagnosed, others are long-term survivors or caregivers. Despite our differences, we share a common goal: to help each other through the challenges of living with Synovial Sarcoma.
While medical doctors occasionally visit the site, licensed professionals do not routinely monitor discussions. Our members cannot diagnose conditions or prescribe treatments, but they share valuable insights and personal experiences that can help guide informed choices.
At Synovial Sarcoma Survivors, we encourage everyone to seek advice from qualified medical professionals before making any healthcare decisions. Our community exists to provide understanding, hope, and connection—not medical direction.
Join our supportive space today and connect with people who truly understand what it means to live with Synovial Sarcoma. Together, we build strength through shared knowledge and compassion.
How is Ben’s Friends Different from Social Media and Other Support Sites?
Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
We’re interested in you as a person, and in your struggles as a rare disease patient. But we don’t want to know your name or where you live. We won’t even allow you to use your real name when you register for one of our communities. Because when it comes to medical things, anonymity is important in our googly universe. Your information is never shared, and your activity never tracked by adware.
When Ben’s Friends asks for the country and region you live in, that’s in case your fellow members can recommend local resources and help, and so everyone knows what kind of medical system there is where you live. That’s important when it comes to giving and getting support. Because we are all about support, and we’re all in this together..
Ben’s Friends: Safe and Supportive.
And anonymous to keep it that way.
Why create an account?
Posts on the different Ben’s Friends communities can be read by anyone on the internet. You can browse through the different topics and find most of the information you’re looking for but there are many things you won’t be able to do unless you create an account. These include:
Making your own posts. Although you’re able to find useful information just by reading other members’ posts, you might still have a lot of questions in your mind. Either you want to start a new topic to talk about them in detail or you want to reply to a comment on a thread. These won’t be possible unless you create a new user account.
Viewing other members’ profiles. Member profiles include information about the country or region they are from, whether they are a patient or a caregiver, and details about their disease and treatments. Maybe you came across an interesting post and you want to learn more about the member. Or maybe you’re looking for members who are from the same country as you. Having a user account allows you to see other member profiles and find information that may be relevant.
Sending private messages. Aside from being able to post publicly and commenting on a thread, having a user account also allows you to send private messages both to other members and moderators. In case you want to discuss a topic only with a specific person, this is possible by sending private messages when you have created your account.
Click here to create an account and join.
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