I haven't formally introduced myself yet so here goes...
My name is Katie, I'm from the UK, I'm 27 years old and a few weeks ago I was diagnosed. I have a deep tumour greater than 5cm (TNM staging - T2bN0M0) between my calf muscle and my shin bone, pressing on the main artery of my leg. I'm having 25 radiotherapy doses to try to shrink it before surgery in January.
I'm currently halfway through the radiotherapy, the tumour is swelling up all angry and the burn has begun to appear on my calf. Yesterday the tumour started to hurt more than usual. What was discomfort has become sharp enough to be considered mild pain. The pain is reminiscent of when I had my biopsy, only not as bad yet. When I had the biopsy I was in severe pain for over a week, and couldn't put any weight on the leg for 10 days. So it's not as severe as that, more like an echo. I'm anxious of the pain increasing to how it was after the biopsy.
I'd really like to know what other people's experience is with pain during treatment. Can it get worse? Can it become chronic or can it stay sporadic? Is it normal?
Any information would be a comfort. Thanks for taking the time to read this.