I just celebrated my 20th year, but sad to say it is back. 5 small tumors in the lymph nodes. I met with my oncologist today and have two suggested treatments - Yondelis or Pazopanib. The way it was explained to me was:
1. if Yondelis works it could stop and/or reduce the size of the nodules. At this point it is not DFA approved and experimental and I meet the criteria for testing.
2. Yondelis could be removed from the market and i should consider trying it prior to Prozonib which is FDA approved and will always be available.
3. Prozonib can only halt the progression of the disease and is only 20% effective.
If you could shed any light on your experiences it would be great! What side effects have you experienced? Can you still work on the treatments? etc???