It’s been awhile since I posted in here, I was diagnosed with Pulmonary SS in my right lung in march, I have a lobectomy with clear margins to remove my upper right lobe
Was NED until late August, multiple nodules were found in my right lung and plural lining. I started High dise Ifosfamide in early September and so far I feel better now then I did before I started chemo
I start my 2nd round in a few days, and the overall hope is to get enough shrinkage so mets can be removed, I know my overall prognosis is not good, but right now dying is not an option for me, I am 33 and married with 3 kids
I became a born again christian in 2014 and I am so glad because I can’t do this without GOD. I believe he can and will lead me to NED, and I have reason to think other wise
My only real question, is please tell me someone has had really good results with IFOS…?
My sarcoma doc is very impressed with well my body has responded, but I still have a long way to go