I was just diagnosed last month with Synovial Sarcoma. I found a lump in my left arm in February after I had some pain in the area (Felt like a sore muscle). Finally, I was referred to an orthopedic doctor (he was my 5th doctor), who decided to take out the lump but thought it was a benign soft tissue tumor the end of June. During my surgery, a frozen cross-sectional biopsy was done and it showed the mass to be benign. Unfortunately, I got the call a week and a half later that full pathology showed it was malignant - Synovial Sarcoma. I had a second surgery to take out margins July 17th - thankfully all of the samples came back clear. I have been diagnosed as Stage IIa.
I just met with radiation and medical oncology last week here - they are recommending 6.5 weeks of radiation every weekday, and are NOT recommending chemotherapy.
I have a second opinion this Thursday with Sloan Kettering in NYC. I am very hopeful that they will also agree with the treatment path recommendation.
Does anyone have any other advice or recommendations? I really appreciate it and thank you for welcoming me to this group.