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May 2014 Community Newsletter


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Rejoice and celebrate the season of Spring. Enjoy the colors and the beauty of nature. Reach out to your friends and loved ones and share the warmth, the colors and happiness of Spring. Greetings from Ben’s Friends!

Welcome New Members!

Thanks for signing! This site is built for the patient, spouses, parents, siblings and friends. Our goal is to connect you with others so you don't feel alone or don't want to overwhelm your family.

Help yourself. Explore our community, write about your experience, ask the community. Reach out to the community anytime you need support. Have fun! Again, our warmest welcome to you.

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IN THIS ISSUE

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Synovial Sarcoma Survivors COMMUNITY HIGHLIGHTS

Featured Content

Featured Member

Picture of the Month

Community Stat

BEN'S FRIENDS HIGHLIGHTS OF THE MONTH

Kudos to Our Ben's Friends Facebook Team

Life With Crohn's is Coming Soon

Ben's Friends Joins the AVM TAAF Walk 2014

Synovial Sarcoma Survivors COMMUNITY HIGHLIGHTS

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Featured Content: Frankie

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Being treated with a certain disease while in a child's age is certainly confusing and overwhelming at times. There will be those times when you won't know what to do and you can't seem to focus on it because of the countless possibilities that can happen. Have any suggestions on the matter? Help out Frankie's grandma through their situation stated on her discussion post. Leave a comment to show how she and Frankie has another family right beside them through these times.

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Featured Member: minion mom

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Just diagnosed this January, minion mom is fighting for her son, Ben. She is doing that she can for her child and she is gathering enough information for him and his recovery. This certainly shows what a mother's love really is. Show how much there is also a family here in the community and help out minion mom on her journey with her son. Perhaps leave a comment or a message to her profile page for the support and the love!

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Picture of the Month

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Need some inspiration in your journey? Check out this photo mary shared for something to ponder on while your moving forwards in life.

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Community Stat:

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Number of Members as of May 1, 2014 : 496

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BEN'S FRIENDS HIGHLIGHTS OF THE MONTH

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Kudos to Our Ben's Friends Facebook Team

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Have you seen our Facebook pages lately? Thanks to the FB team who have given our Facebook pages a new and improved look: Dancermom and Debra (AVM), Amanda (Addison's), Jane (PsA), Mandy (Chiari), Mads, Nel, and David (Erythromelalgia), and above all, our talented and dedicated Facebook Manager, Stephen Cox (PSC and Crohn's).

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Life With Crohn's is Coming Soon

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We are pleased to announce the launch of our Life With Crohn's community - a community dedicated to patients affected by Crohn's- a chronic condition that causes inflammation of the gastrointestinal tract. If you know someone who has Crohn’s Disease, please invite them to join our community and spread the word about Crohn’s.

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Ben's Friends Joins the AVM TAAF Walk 2014

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Ben's Friends Partners (Eric, Scott and Haley) along with several AVM Survivors members joined the 9th AVM-TAAF Walk2014 on May 4, 2014 in San Francisco. Over 500 participants gathered to raise awareness and funds to support TAAF's research, educational outreach, and programs. The Aneurysm and AVM Foundation (TAAF) is a 501c3 nonprofit dedicated to bettering the lives, support networks, and medical care of those affected by aneurysm and other vascular malformations of the brain.

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