I was originally diagnosed with SS in Dec. 2011. I had a large tumor behing my rt knee. I had my leg amputated in Jan 2012.. At the time of initial diagnosis, I had 4 very small nodules on my lungs.The doctors just watched them at first via ct scans and then they began to grow a bit. In Oct 2012 I had one of the mets removed surgically. I wanted to have the other three removed by cyberknife. I was told by the radiation oncologist that cyberknife would eliminate the nodules. I had 2 nodules on my left lung one on the upper lung and one on the lower lung and one nodule on the rt lower lung. When they were about to perform the cyberknife treatment the dr told me that the nodule on the rt lung was too small to risk having the cyberknife miss hitting it during the procedure and damaging tissue in the process. So they just did the cyberknife on my left lung on the two nodules that were remaining. They didnt know right away if the cyberknife worked. So in March 2 months later, I had a ct scan which revealed that the two nodules had shrunk but were still there.My oncologist said I was in partial remission. I just had another ct scan on June 10 one of the nodules that was cyberknifed grew from 6mm to 2.5 cm and the nodule on the rt lung that they said was too small to cyberknife grew from 5mm to 6mm.
I said to my oncologist I should have had the nodules removed surgically instead of by cyberknife he said dont say that, surgery has its complications and cyberknife does work sometimes. He said this type of cancer unfortunately comes back.
My questions are for those of you that have had mets removed surgically, At what point did you have the mets removed? Were they a certain size? Have you had mets removed from the rt and left lung at the same time or did you have to have 2 surgeries because they were on two different sides of the lung?
Would appreciate any feedback... when do we ever have peace of mind with this disease?