So, here is where it started. I had what I thought was likely just tendinitis for the last 9 years that developed after a trauma to the inner elbow back then. I had been advised to wear a brace for the tendinitis two years ago, which prevented me from paying close attention to that area. In September 2013 I developed numbness in areas of my left hand that, while it has not impaired functionality, has never gone away. My doctor's response was that it was likely carpal tunnel. A month later my doctor noticed a hardness in the nearby area that concerned him and sent me for an MRI.
MRI in November (delayed by the insurance) finally showed a tumor that is at least 10 cm. The tumor is wrapped around my arm in the inner elbow area, surrounding nerves which is causing my recent finger numbness. Biopsy at Mass General eventually followed in November, but we were told it would likely be benign. Diagnosed as Synovial Sarcoma on 12/11/2013. PET scan on 12/13/2013 showed that it has not yet spread. Dr. Raskin and his team at Mass. General told me on 12/16/2013 that radiation is not an option due to the size and location. Further, they said that due to the size and location that an amputation was my best option. I am very resistant to that idea. I am in the process now of trying to get a second opinion on treatment options.
Any thoughts on this are greatly appreciated. Again, it was just yesterday when I was told that amputation is my best option. That is more than a bit hard to deal with. I am hoping that doctors at Dana Farber will be able to give me other options. I have my first appointment there this Friday the 20th.