I am so pleased that we have found eachother on this site.... i would realy want to meet you in person and give you a big hug......... its a pitty that we live so far apart.
I get so scared sometimes when i feel tired and my head hurts... luckely a have a direct line to the pediatrician here in Almelo and she has a direct line to my oncologist in Groningen.
I can go there each day if i want to get reasureance and comfort by giving me the extra care that i need. She can give me a MRI within one week.
The after effects of radiation and chemo ( ifo/doxo) are beginning to show i don't know how to deal with them..... but i am still living one day to the next.
Max ,Dont feel alone. I am here.I had the same thing in the same area.really wierd you showed up..I was online seeing if they have new cures...treatments and found this site. I dont think it was a coencidense...same scar...same side of neck...I live with loss of saliva ,my tongue is sore 16 yrs later,But nothing serious...Life is good.My doctor was dr,richard hayden.look him up online,he is now in scottsdale arizona. he was at unn of penn, in philladelphia.His skills saved my life.Please let me know if you got this message,I know how you are feeling and taling to me will give you the faith and hope you need,