My brother Eric has synovial sarcoma. He's had numerous rounds of radiotherapy and chemo. The last two cycles of chemo were at the University of Michigan. All treatments have failed to reduce his three tumors. His oncologist is trying to get him into a clinical trial at NIH, but the approval process to get into the trial is slow and puzzling. (We don't get much information from our oncologist because NIH isn't very open about their research, apparently.)
His oncologist is stressing that he do more chemo, but he is apprehensive because the previous rounds of chemo were either ineffective or harmful (the last round put him in the ICU for several days). He refuses to do more chemo unless a second doctor from another hospital confidently recommends it. He really wants a second opinion.
We've asked the oncologist for other doctors to contact but they haven't been very forthcoming in that information and we're getting impatient.
So, how do I go about looking for a second opinion? What are some other sarcoma clinics that I could contact? We live in Ann Arbor, MI now so it would be great to find something nearby or in the midwest. We could travel further than that but my brother is weak and probably wouldn't travel well.
Thanks in advance for your feedback.