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Fighting the good fight


#1

Hello everyone. First off, this site is great. Just nice to read other peoples stories, good and bad. It's very grounding to hear from others dealing with the same issues.

I was diagnosed with SS in July. It's located in my lower chest just outside my esophagus. I have just completed 4 rounds of Dox/Ifo. Response has been positive with signs the chemo has shrunk the tumor. Awaiting now to see if I can get into Mayo for proton therapy. Then surgery.

As with most I have a lot to fight for so I know I am going to kick this cancers ass. I have kept my attitude wicked positive and it really help me get though chemo with not to many downfalls.

I just wanted to introduce myself, keep moving forward, continue to be awesome because nothing can compete with awesome including this shitty cancer.

I will be lurking

Thanks

Chris

43yr Male - Location: MN


#2

Good luck! Hopefully everythinggoes according to plan!


#3

Good luck Chris! Keep us posted!


#4

Stay strong god bless


#5

Got your backā€¦ <3


#6

Good luck!!! Attitude is 75% of the battle. You can do anything you put your mind to!


#7

Your words inspired me. Goodluck!


#8

Thanks for the response everyone. Getting ready to do (Nov 9) 5 weeks of radiation with cisplatin. Curious to know, how is the cisplatin side effects compared to Doxi/Ifo? I of course read up on it but kind of want to hear the "boots on the ground" reports. I got through the Dox/Ifo pretty decently.

Staying positive because anything else is a waste of energy.

Thanks

Chris


#9

Cisplatin is not a conventional treatment for sarcoma so I don't know if you will find many people who have experience with it. I did get cisplatin but with doxorubicin so I wouldn't know if the side effects were from one or the other drug. But they were similar to ifosfamide's side effects.