So I have successfully been screened and accepted into the Trivalent Ganglioside Vaccine With Immunological Adjuvant or Immunological Adjuvant Alone in Metastatic Sarcoma Patients Who Are Rendered Disease Free. Actually, I have already received the first 2 vaccinations. The reported side effects are low,30% experience flu like symptoms 2-3 days after receiving the shot, and luckily I have not gotten any of those symptoms, and hopefully I am in the 50% that gets the vaccine. It is a double blind trial, so I think it will be a number of years before anybody can reveal to me if I have been getting the vaccine or not. It is also open to all soft tissue sarcomas. Hopefully my Synovial Sarcoma, if there is any left in me, responds to these immune system changes in me.
I personally couldn’t pass this up, after listening to my doctors, and understanding that right now my other option would be to receive no treatment and monitor my chest/abdomen/pelvis with CT scans.
I still feel better than I have in years, even before my lung surgery. I am essentially recovered from that as well, just a little soreness when I stretch.
Also one other I feel I should mention is my continued acupuncture treatments that I have been receiving for over a year. Primarily, they helped me with the overwhelming nerve pain associated with the nerve graft I received to my tibial nerve. Acupuncture was my only source of pain relief for months post surgery, and has been an invaluable compliment to all the other modern medicine treatments I have been receiving. I would highly recommend it to anyone considering it. I can’t imagine where I would be without it in my recovery. From anxiety to pain relief it has been a huge help.
If anyone else is in this trial, I would be interested to hear if they have experienced anything more than I have with side effects or even better, success in helping prevent more metastasis.
Thanks, and take it easy,