So my husband had one round of inpatient AIM last summer as adjuvant following surgery to amputate his right arm and clean scans. Got neutropenia right away and back in hospital for another week. He felt so bad that he stopped chemo and since scans were clean and you never know if chemo works or not until you try, I supported the decision. He has had significant phantom pain since first surgery. But started to get under control a end of last year
So he had a local recurrence with another surgery and now some lung mets this year. Radiation, a second surgery. All good. Now chemo again. Oncology team did everything humanly possible to manage pain and nausea and he did quite well until last day. Now he feels so bad he is basically just lying bed. Not taking meds cannot eat or drink. I got a sancuso patch started today and not sure when or if it will kick in
So is this the way it is and we simply have to weather the storm? What to do when it seems like nothing works? How can we do this repeatedly?
Would like perspective if this is what we should expect. Pain patches and nausea patches. What else is there? Meds for breakthrough pain. What else to try. He can take a lot but chemo kicks his butt