2 yrs ago when I 1st found my tumor and stared my treatment I was told for the chemo part I would be taking Ifosfomide/Doxirubicin and Mesna. I live 250 miles from the Cancer Clinic that initially treated me with RAD and surgeries. “Chemo can be done anywhere” I was told, so I had my chemo done near my home and at a MUCH smaller facility. I NEVER felt comfortable with the Onc Dr I was seeing near my home but I was told a cocktail is a cocktail and you can have it done anywhere and I don’t need to “like” a Dr for him or her to be effective.
Well, I left that Onc Dr and had all my documents transferred and I read on the paperwork that the Onc Dr ordered the cocktail of IFOSFOMIDE-PIRARUBICIN/MESNA. He replaced the Doxorubicin with Pirarubicin. Has ANYONE ever heard of this? The Onc Dr said “no, Pira is the correct drug”. He’s useless.
I KNOW the original plan (with Onc Dr’s who’d actually dealt with SS) was to use Doxorubicin, not Pirarubicin.
The orders were clear to run Ifo-Doxo with Mesna. Pirarubicin is for breast cancers and such and not for SS isn’t it?
CAN ANYONE HELP? PLEASE?
I’m having what feels like heart issues now and having tests done this week. I feel worse physically now than I did 8 months ago and I finished my chemo 14 months ago!
I am free of ANY signs of Cancer and I am VERY grateful!
Y’all hang in there & keep up the good and tough Fight!