Welcome

Welcome! You're not alone.

If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.

NOW....GET STARTED:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Birthdays

Birthdays Today

Need a Doctor or Specialist?

Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Please Be Kind & Use Appropriate Language

 
Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.   
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. S
pecific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.
Thanks for your cooperation.
 

Learn More About Synovial Sarcoma

Brought to you by Patient Power.

ClinicalTrials.gov Studies

Loading… Loading feed

Photos

Loading…

Your Community Moderators

Gift Store

About

 

WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

aldoxorubicin p3-sts 01

Started by rk in General. Last reply by Elodie Espesset yesterday. 1 Reply

hello       all          any body knows about the aldoxorubicinContinue

Neulasta

Started by Kelly in General. Last reply by Elodie Espesset yesterday. 1 Reply

Can anyone tell me of some of their side effects of Neulasta and anything that might have helped.Thank youContinue

Hello to All

Started by Joe in General. Last reply by jimK on Sunday. 12 Replies

Hello all,I am glad to have found this group.  I will be turning 40 in October and was diagnosed in April of 2013 when I was 38.  I had Neck pain for quite a while and headaches many times a week for…Continue

Clinical Trial

Started by Kelly in General. Last reply by jimK on Sunday. 1 Reply

Does anyone have experience with the clinical trial titled" A pilot study of Genetically Engineered NY-ES0-1 Specific ( c259) T cells in HLA-A2+patients with synovial sarcoma?Continue

Ben's Friends Member Survey

Thank you for taking time to participate in our survey.  We are so grateful that more than 1000 of you responded! We are now working on analyzing the data. We'll let you know of the survey results soon.

Mobile App and E-Book Available!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

  • Share your story on "My Page" & personalize it to reflect you.
  • Upload pictures & videos easily.
  • Start a new discussion on "Forum" or contribute to existing discussions.
  • Welcome new members with a comment on their page.

* We only offer peer-to-peer support (patients, family and friends). Unless a person states otherwise, we are not doctors.

This site is brought to you by Ben's Friends Patient Communities.

Latest Activity


Moderator
dancermom left a comment for Jim
"Welcome, Jim, to this supportive community. Feel free to open a discussion to introduce yourself or…"
5 hours ago
Jim is now a member of Synovial Sarcoma - Online Support Group
5 hours ago

Moderator
Elodie Espesset commented on Kelly's status
"Have you tried anything made with ginger or peppermint? At my cancer center, they usually give…"
11 hours ago

Moderator
Elodie Espesset and Kelly are now friends
13 hours ago
Kelly posted a status
"Any advice to get rid of the taste in the mouth from the ifos?"
yesterday

Moderator
Elodie Espesset replied to rk's discussion aldoxorubicin p3-sts 01
"In the US, the aldoxorubicin trial is currently on hold following the death of a patient. They are…"
yesterday

Moderator
Elodie Espesset replied to Kelly's discussion Neulasta
"Here is a discussion about neulasta side effects which gives a tip for handling back pain, which is…"
yesterday
Kelly posted a discussion

Neulasta

Can anyone tell me of some of their side effects of Neulasta and anything that might have…See More
Monday

Top Content 

1 Howdy Y'all

Howdy Y'all

Posted by Mandie on November 8, 2014

2 Your experiences with pain?

Your experiences with pain?

Posted by Katie on November 19, 2014

3 Do alternative therapies work?

Do alternative therapies work?

Posted by HopeandFaith on November 20, 2014

4 cannabis oil

cannabis oil

Posted by Kelly on November 6, 2014

5 synovial sarcoma of lung

synovial sarcoma of lung

Posted by rk on November 9, 2014

 
 
 

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Help Us Help Others

To Support SynovialSarcomaSurvivors.org, Click an Ad. Or Two.

Bens Friends

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

Join Ben's Friends

Blog Posts

Combination fo Vorinostat and Ridaforolimus to Treat Synovial Sarcoma?

Posted by Elodie Espesset on November 20, 2014 at 10:08am 0 Comments

The following study suggests vorinostat could potentially improve efficiency of ridaforolimus:

http://www.ncbi.nlm.nih.gov/pubmed/25406429

I'd like to see a mouse study...

Intradermal ID-LV305 Clinical Trial

Posted by Elodie Espesset on November 19, 2014 at 9:25am 2 Comments

Another vaccine to target NY-ESO-1 but apparently this time there is no restrictions on HLA type:…

Continue

Aldoxorubicin Trial on Hold

Posted by Elodie Espesset on November 19, 2014 at 9:21am 0 Comments

Apparently due to the death of a patient, the company has to review its inclusion/exclusion criteria for recruiting patients:…

Continue

Partners

BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service