Welcome! You're not alone.

If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.


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All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

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Ben's Friends Member Survey

Thank you for taking time to participate in our survey.  We are so grateful that more than 1000 of you responded! We are now working on analyzing the data. We'll let you know of the survey results soon.

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Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

  • Share your story on "My Page" & personalize it to reflect you.
  • Upload pictures & videos easily.
  • Start a new discussion on "Forum" or contribute to existing discussions.
  • Welcome new members with a comment on their page.

* We only offer peer-to-peer support (patients, family and friends). Unless a person states otherwise, we are not doctors.

This site is brought to you by Ben's Friends Patient Communities.


Lung nodules

Started by Noggin in General. Last reply by Aperez on Wednesday. 4 Replies

Will's resection took place in Jan 2013. A 10 cm circle, 4 cm deep, was removed from his left lower back, the right side had to be cut to close the left side, and his right leg was used as a donor…Continue

Alternative treatments

Started by Michael Stangel in General. Last reply by Elodie Espesset Apr 12. 15 Replies

My primary started growing again at the end of November and I started Votrient at that time. By early Feb everything had progressed substantially again so we switched to Doxil annd tried 2 rounds of…Continue

Clear scans but sore chest pain. Anyone going through similar case?

Started by BobbyB89 in General. Last reply by Noggin Apr 9. 4 Replies

I had my follow up 3 month scans and they showed NED. I'm not sure how I feel about this because I have a very sore chest pain that comes and goes. I told my doctor about it and he says not to worry.…Continue

Morab 004

Started by Andy in General. Last reply by Elodie Espesset Apr 9. 1 Reply

. I started chemo Weds April 2, with the trial drug. At noon I went in for the 4 hour treatment, then a 4 hour watch period to see if the Morab-004 caused a reaction. I started feeling crappy at 8…Continue

Tags: Morab

Latest Activity

Aperez replied to Noggin's discussion Lung nodules
"I have three small nodules that that we're keeping an eye on. Three disappeared with high dose…"
dancermom commented on Elodie Espesset's blog post Phase II Anti-NYESO-1 immunotherapy trial at NIH
"Thank you for posting this, Elodie. Good information."

Elodie Espesset posted a blog post

Phase II Anti-NYESO-1 immunotherapy trial at NIH

For those who are looking for a trial right now, you should check whether you may be eligible for…See More

Elodie Espesset replied to Michael Stangel's discussion Alternative treatments
"Since you opted out of chemo, you may want to stay in contact with a palliative care team for when…"
Apr 12
irish shiela replied to Michael Stangel's discussion Alternative treatments
"Your have made a very brave decision to opt out of chemo I no that must have been hard for you but…"
Apr 11
Michael Stangel replied to Michael Stangel's discussion Alternative treatments
"I appreciate all the input. My doctors recommended high dose Ifos or Navelbine with Gemcitibine.…"
Apr 11
Max replied to Michael Stangel's discussion Alternative treatments
Apr 11
Michael Stangel replied to Michael Stangel's discussion Alternative treatments
"Thanks Trish and I sure hope good for you and your daughter. I am going to inquire today about…"
Apr 10

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"Thank you!"

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- a member from Synovial Sarcoma - Online Support Group

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- a member from Synovial Sarcoma - Online Support Group

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Blog Posts

Phase II Anti-NYESO-1 immunotherapy trial at NIH

Posted by Elodie Espesset on April 15, 2014 at 12:34pm 1 Comment

For those who are looking for a trial right now, you should check whether you may be eligible for the following:




March 2014 Community Newsletter

Posted by Ben Munoz on March 27, 2014 at 11:35am 0 Comments

Dear Synovial Sarcoma Survivors Family and Friends,

March 2014 is an exciting month for Ben’s Friends, as everything seems to fall into place! But before we share the good news, we invite you to participate in a brief survey on the…



Posted by dreestrong on March 13, 2014 at 10:42am 6 Comments

Hello everyone, just wanted to give you all an update on Adrian he just went through surgery and everything went better than expected,  :) but as we all know even though the tumor is gone.. the anxiety stays, hoping it does not return. Staying…



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