Welcome

Welcome! You're not alone.

If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.

NOW....GET STARTED:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Concerned About Privacy

Since content and usernames are searchable on this site, you may protect your anonymity by creating a unique username.

To change username, click here. 

Birthdays

Birthdays Tomorrow

Members

Need a Doctor or Specialist?

Disclaimer

All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
  2. No spam.
  3. No personal attacks or defamatory posts.
  4. No offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. No solicitations or promotions of goods or services. No fundraising without the permission of the moderators.
  8. No email addresses or phone numbers on the forum, please.
  9. We welcome people of any faith and no faith, but we ask that you not evangelize or attempt to impose your belief system on other members.
  10. Check your politics at the door, please.

Thanks for your cooperation.

Learn More About Synovial Sarcoma

Brought to you by Patient Power.

Photos

Loading…

Your Community Moderators

Have a question, concern, or suggestion? Or would you like to volunteer?

Please send a private message to a moderator.

Elodie
JimK

Gift Store

About

 

WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

Cancer Treatment Centers of America

Started by Trish in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Trish 17 hours ago. 3 Replies

Hi - has anyone received treatment or a second opinion from the Cancer Treatment Centers of America.  Can you please share your experience? Thank you.  All the best.  TrishContinue

Hi everyone.

Started by Chris in Newly Diagnosed. Last reply by Elodie Espesset yesterday. 8 Replies

   Hello everyone and thank you for accepting me here. I was diagnosed in July 2013 after discovering a pain full mass in my right thigh close to my hip. After being told its just scar tissue from a…Continue

Vaccine Trial LV305

Started by mary in Personal Experience with Clinical Trials. Last reply by Caelan's grandma on Thursday. 8 Replies

Just finished the vaccine trial for 3 nodules in my lungs.I had the vaccines every 3 weeks over a 4 month period.I did not experience any side effects from the vaccine.They give you 8 shots per…Continue

Ben's Friends Member Survey

Thank you for taking time to participate in our survey.  We are so grateful that more than 1000 of you responded! We are now working on analyzing the data. We'll let you know of the survey results soon.

Mobile App and E-Book Available!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

  • Share your story on "My Page" & personalize it to reflect you.
  • Upload pictures & videos easily.
  • Start a new discussion on "Forum" or contribute to existing discussions.
  • Welcome new members with a comment on their page.

* We only offer peer-to-peer support (patients, family and friends). Unless a person states otherwise, we are not doctors.

This site is brought to you by Ben's Friends Patient Communities.

Latest Activity

Sonnut and Debra are now friends
15 hours ago
Trish replied to Trish's discussion Cancer Treatment Centers of America
"Thank you so much for the feedback.  Sorry you did not have success with them. My daughter has…"
17 hours ago
butterphly7 replied to Trish's discussion Cancer Treatment Centers of America
"My husband went there for his primary treatment after getting a third opinion from them. We did not…"
18 hours ago

Moderator
Elodie Espesset left a comment for twinljp
"Happy Birthday :-)"
22 hours ago

Moderator
Elodie Espesset left a comment for Garg
"Happy Birthday Garg! How are you doing with your treatment?"
22 hours ago

Moderator
Elodie Espesset replied to Trish's discussion Cancer Treatment Centers of America
"They certainly spend a lot of money in advertising. But do they have sarcoma specialists?"
22 hours ago
Trish posted a discussion

Cancer Treatment Centers of America

Hi - has anyone received treatment or a second opinion from the Cancer Treatment Centers of…See More
yesterday
johnf liked mary's discussion Vaccine Trial LV305
yesterday

Top Content 

1 Newly Diagnosed and Scared!

Newly Diagnosed and Scared!

Posted by Devon on March 31, 2015

2 Amputation of left arm next week

Amputation of left arm next week

Posted by Johnboy Esq on March 24, 2015

3 Vaccine Trial   LV305

Vaccine Trial LV305

Posted by mary on April 14, 2015

4 How Great is My God!

How Great is My God!

Added by Devon on April 2, 2015

5 My brother passed away last week.

My brother passed away last week.

Posted by happythoughts22 on April 6, 2015

 
 
 

Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Help Us Help Others

To Support SynovialSarcomaSurvivors.org, Click an Ad. Or Two.

Bens Friends

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

SynovialSarcomaSurvivors is a peer-to-peer network

To get support, give support.

Join Ben's Friends

Blog Posts

How Great is My God!

Posted by Devon on April 2, 2015 at 6:11pm 7 Comments

WOW! Less than 24 hours after deciding that CHOP is where I want to be treated they call us with glorious news. 



They met as an entire team today and have decided that they want to delay chemotherapy!! They are going to do more tests and…

Continue

Local Fundraiser for Ben's Friends

Posted by Scott Orn on March 22, 2015 at 10:34am 0 Comments

I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends."

It was a big success as we…

Continue

Immunotherapy

Posted by Kelly on March 17, 2015 at 6:28pm 0 Comments

Has anyone participated in an immunotherapy trial with Pembrolizumab?

Hypoxia, Glucose Deprivation, HIGD1A and Tumor dormancy

Posted by Elodie Espesset on March 4, 2015 at 10:47am 0 Comments

According to a new study, Hypoxia-Inducible Gene Domain Family Member 1A (HIGD1A) may be instrumental in cancer cells ability to survive hypoxia and glucose deprivation:…

Continue

Partners

BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

© 2015   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service