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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.


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Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.


Tumor pain

Started by mlukeuk in Unexplained Symptoms. Last reply by mlukeuk 5 hours ago. 3 Replies

Has anyone heard of or experienced increased tumor pain during or just after chemotherapy?I've always been a symptomatic with regards to my lung mets but all of a sudden this week just after my chemo…Continue

Amputation of left arm next week

Started by Johnboy Esq in Emotional Support. Last reply by jimK yesterday. 11 Replies

I just spoke with my oncologist yesterday morning. After the last year and a half since diagnosis my tumor is still contained yet still growing, and some of my symptoms have been increasing as my…Continue

Do you know of a surgeon that could help my brother?

Started by happythoughts22 in Treatment Options. Last reply by camiam on Wednesday. 10 Replies

I have an urgent question. We need help finding a surgeon for my brother or a specialist that can offer some urgent direction. So, just to recap, my brother (26) has synovial sarcoma. He has three…Continue

Tags: emergency, surgery, trials, clinical

Keeping looking for a surgeon or give up and go home?

Started by happythoughts22 in Treatment Options. Last reply by Meg on Wednesday. 3 Replies

I previously posted a topic about looking for my brother who has synovial sarcoma. He's urgently looking for a surgeon or a final second opinion. Here's the post: …Continue

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Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

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Latest Activity

mlukeuk replied to mlukeuk's discussion Tumor pain
"Gemzar/taxotere but only had the gemzar up to now and getting the combo on Monday. I will be…"
5 hours ago

Elodie Espesset replied to mlukeuk's discussion Tumor pain
"Have you discussed this with your physician? Which chemo have you started? It could probably be due…"
7 hours ago
mlukeuk replied to mlukeuk's discussion Tumor pain
"I meant to type *ASYMPTOMATIC (no symptoms)"
18 hours ago
mlukeuk posted a discussion

Tumor pain

Has anyone heard of or experienced increased tumor pain during or just after chemotherapy?I've…See More
19 hours ago

jimK left a comment for barbie54
"Welcome aboard - the community is very open, friendly and helpful - simply start participating in…"

jimK replied to Johnboy Esq's discussion Amputation of left arm next week
"Agreed - it is choosing life!"

Elodie Espesset left a comment for sashaminpin
"Happy Birthday Sashaminpin!"

Elodie Espesset left a comment for Bram
"Happy Birthday Bram!"

Top Content 



Posted by mlukeuk on March 18, 2015

2 Hi everyone!

Hi everyone!

Posted by JulieK4 on March 9, 2015

3 Toe Nails

Toe Nails

Posted by Sonnut on March 6, 2015

4 Can't get surgey, any other options?

Can't get surgey, any other options?

Posted by JulieK4 on March 20, 2015

5 Immunotherapy


Posted by Kelly on March 17, 2015


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Blog Posts

Local Fundraiser for Ben's Friends

Posted by Scott Orn on March 22, 2015 at 10:34am 0 Comments

I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends."

It was a big success as we…



Posted by Kelly on March 17, 2015 at 6:28pm 0 Comments

Has anyone participated in an immunotherapy trial with Pembrolizumab?

Hypoxia, Glucose Deprivation, HIGD1A and Tumor dormancy

Posted by Elodie Espesset on March 4, 2015 at 10:47am 0 Comments

According to a new study, Hypoxia-Inducible Gene Domain Family Member 1A (HIGD1A) may be instrumental in cancer cells ability to survive hypoxia and glucose deprivation:…


Better Not Discontinue Yondelis If Stable on It

Posted by Elodie Espesset on March 3, 2015 at 10:06am 0 Comments

A study of interruption versus continuation of yondelis after 6 cycles of stability under treatment suggests it's bad to discontinue the drug to take a break from it:…



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