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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.

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WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

Gem/Tax Combo Experience

Started by Katie T in General. Last reply by glori yesterday. 8 Replies

For those of you who have tried this combo can you share your experiences? What are the side effects like?  We really selfishly want to squeeze in a family vacation if Dan is feeling up to it.   Dan…Continue

Reading material while on Chemo...

Started by mammoth in General. Last reply by Traceyb on Saturday. 6 Replies

My son in law will be starting chemo next Monday July 21/14... I was wondering if anybody could recommend a good book to read for him... I found one I thought may fit the bill called, Ask and it is…Continue

Additional therapies

Started by floydBSN in General. Last reply by Johnboy Esq on Saturday. 1 Reply

Has anyone used other therapies for treatment of cancer, such as immunotherapy(interferon infusion), colony stimulating factors, or monoclonal antibody

Got CT scan reports of my MOM , synovial sarcoma got cured

Started by krishna in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Elodie Espesset on Friday. 8 Replies

Hi , Told na today we will get results.Finally I am feeling happy , as Doc confirmed that tumor has been cured.Thing is we went for…Continue

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Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

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Latest Activity


Moderator
Elodie Espesset posted a blog post

The STAR System to Treat Metastatic Spinal Lesions?

Study results of a new RFA device called the STAR system:…See More
14 hours ago
glori replied to Katie T's discussion Gem/Tax Combo Experience
"THank you for sharing Kayleigh'sDad."
yesterday
mary left a comment for MAlloryw728
"Welcome to the group Mallory!!! I'm sorry to hear about your ex-husband's condition but…"
Sunday
Johnboy Esq posted a status
Sunday
Johnboy Esq posted a blog post

Sharing is Caring!

My wife and I have been finding comfort in sharing our experience with others:My Story:…See More
Sunday
Johnboy Esq updated their profile
Sunday
Johnboy Esq and Sage are now friends
Sunday

Moderator
Elodie Espesset commented on Ede's blog post A question to everyone of you and a report from my son Jeremy
"It does sound like a mistake they do not want to admit... SS can metastasize to the brain although…"
Sunday

Top Content 

1 Sad News

Sad News

Posted by Katie T on July 9, 2014

2 New diagnosis of SS in the foot..... Suggestions on how to go about treatment?!!

New diagnosis of SS in the foot..... Suggestions on how to go about treatment?!!

Posted by floydBSN on July 23, 2014

3 Got CT scan reports of my MOM , synovial sarcoma got cured

Got CT scan reports of my MOM , synovial sarcoma got cured

Posted by krishna on March 18, 2014

4 Reading material while on Chemo...

Reading material while on Chemo...

Posted by mammoth on July 14, 2014

5 a transition

a transition

Posted by Bruce_S on July 4, 2014

 
 
 

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Blog Posts

The STAR System to Treat Metastatic Spinal Lesions?

Posted by Elodie Espesset on July 30, 2014 at 4:13am 0 Comments

Study results of a new RFA device called the STAR system:…

Continue

Sharing is Caring!

Posted by Johnboy Esq on July 27, 2014 at 5:24am 0 Comments

My wife and I have been finding comfort in sharing our experience with others:

My Story: https://medicalmarijuanacancerpatient.blogspot.com/

My Wife's Story:…

Continue

A question to everyone of you and a report from my son Jeremy

Posted by Ede on July 27, 2014 at 3:21am 1 Comment

Hi all,

I thought, I wanted to ask you some question about the aftercare and tell you about our experiences with the pediatric cancer station of the university of Giessen.

Last…

Continue

Aldoxorubicin Phase III Trial

Posted by Elodie Espesset on July 26, 2014 at 3:49am 0 Comments

This trial is currently recruiting:

https://clinicaltrials.gov/ct2/show/NCT02049905

Results of the phase 2 trial were announced here:…

Continue

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