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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.

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WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

Immunotherapy for SS in lungs

Started by mary in General. Last reply by jimK 17 hours ago. 12 Replies

Was told today by my radiation oncologist that my best option right now is to see if I am eligible for the immunotherapy clinical trial.I am looking for treatment either in  NY or Boston if possible…Continue

any other possible treatment options?

Started by glori in General. Last reply by glori yesterday. 4 Replies

Hello, Survivors!My mother is fighting hard and tried many chemos. However, now we are looking for treatment options again. She already have tried:6 cycles of Ifo-Doxo (2012 jan)Pazopanibum (2012 dec…Continue

Round 1 of chemo

Started by jsinder in General. Last reply by Kazzy on Sunday. 12 Replies

My husband's first round chemotherapy is AIM. The doctor had us do a chest x-ray after this first round and it shows that the nodules in his lungs have grown slightly.... does this mean that this…Continue

My son's song about dealing with synovial sarcoma

Started by DeborahBP in General. Last reply by DeborahBP on Saturday. 4 Replies

Hi everyone:Recently my 23-year-old son was granted a weeklong respite by a wonderful charity for young sarcoma patients, ages 18-24, called the Nikolas Ritschel Foundation, To thank them Drake…Continue

Tags: fighting, for, you, Ritschel, Nikolas

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Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

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This site is brought to you by Ben's Friends Patient Communities.

Latest Activity

jimK replied to mary's discussion Immunotherapy for SS in lungs
"I had several side effects in the beginning with Votrient. They all evened out over time. These…"
17 hours ago

Moderator
Elodie Espesset left a comment for Trish
"Happy Birthday Trish! I know it could be a better one :-("
yesterday
glori replied to glori's discussion any other possible treatment options?
"Hello, Danie, I hope you are doing well! How is your treatment in Austria going? Did you find…"
yesterday
mary replied to mary's discussion Immunotherapy for SS in lungs
" "
yesterday
mary replied to mary's discussion Immunotherapy for SS in lungs
" "
yesterday
jimK replied to mary's discussion Immunotherapy for SS in lungs
"I had known my cancer had come back and met with my oncologist to discuss my options with him and…"
yesterday
mary replied to mary's discussion Immunotherapy for SS in lungs
"Thank you everyone for the info. I checked the trials online and unfortunately the age limit is 55…"
yesterday
Danie and glori are now friends
Sunday

Top Content 

1 Round 1 of chemo

Round 1 of chemo

Posted by jsinder on October 14, 2014

2 Stomach and digestive issues after chemo

Stomach and digestive issues after chemo

Posted by Aperez on September 30, 2014

3 New here, new to SS

New here, new to SS

Posted by Sonnut on October 5, 2014

4 Back to a "Normal Life"

Back to a "Normal Life"

Posted by Caelan's grandma on September 21, 2014

5 Immunotherapy for SS in lungs

Immunotherapy for SS in lungs

Posted by mary on October 16, 2014

 
 
 

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Blog Posts

EPZ-6438 (E7438)

Posted by Elodie Espesset on October 18, 2014 at 2:00pm 0 Comments

 Epizyme just presented results of a pre-clinical study of its EZH2 inhibitor EPZ-6438 in models of synovial sarcoma:…

Continue

Pneumothorax and Votrient

Posted by Elodie Espesset on October 11, 2014 at 10:07am 0 Comments

A new study from the Netherlands discusses the incidence of pneumothorax in patients with sarcoma lung mets who are receiving votrient:…

Continue

A New Lab Born from Research on Synovial Sarcoma

Posted by Elodie Espesset on October 3, 2014 at 10:07am 0 Comments

This is quite exciting and hopefully it will bring us better therapies:…

Continue

Circulating Tumor Cells in Synovial Sarcoma

Posted by Elodie Espesset on September 28, 2014 at 8:53am 0 Comments

In a recent study, circulating tumor cells were found in the blood of all 6 synovial sarcoma patients:

http://www.ncbi.nlm.nih.gov/pubmed/25258541

This was a study on a small…

Continue

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