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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.

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WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

Bad taste in mouth

Started by Kelly in General. Last reply by Sonnut 2 hours ago. 2 Replies

Any ideas for getting rid of the bad metallic taste in mouth during and after chemo? Sweets are not tolerable.

Ketogenic Diet helpful or not?

Started by dutch in General 5 hours ago. 0 Replies

Our sons synovial sarcoma had another reoccurrence in his other lung two weeks ago. Surgery was successful. We are still waiting for the results for another treatment plan...A good friend of us…Continue

Pazopanib?

Started by SpaceGirlincognito in General. Last reply by dutch 5 hours ago. 3 Replies

Hey everyone. Thought I'd introduce myself a little bit and join in the talking :)I've been so glad to read your stories and advice as my husband begins his fight.His tumor (in the center of his…Continue

Tags: doxorubicin, ifosfamide, pazopanib

Neulasta

Started by Kelly in General. Last reply by dutch 5 hours ago. 3 Replies

Can anyone tell me of some of their side effects of Neulasta and anything that might have helped.Thank youContinue

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Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

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Latest Activity

Sonnut replied to Kelly's discussion Bad taste in mouth
"Lemon drops are awesome, but not sure if that's too sweet for you.  I also found fresh…"
2 hours ago
dutch updated their profile
5 hours ago
dutch posted a discussion

Ketogenic Diet helpful or not?

Our sons synovial sarcoma had another reoccurrence in his other lung two weeks ago. Surgery was…See More
5 hours ago
dutch replied to SpaceGirlincognito's discussion Pazopanib?
"Our son (now 17)had doxorubicin and ifosfamide in 2010 for 7 treatments and this cancer stayed away…"
5 hours ago
dutch replied to Kelly's discussion Neulasta
"My son never had any side effects of the Neulasta. Actually we were really happy with this…"
5 hours ago
dutch replied to Kelly's discussion Bad taste in mouth
"My son always used to rinse his mouth with water and baking soda. You put about 1 teaspoon of…"
5 hours ago

Moderator
Elodie Espesset commented on Elodie Espesset's blog post Sarcoma Registry
"This registry was set up by an orthopedic surgeon. He is most likely looking to improve his…"
6 hours ago
Kelly posted a discussion

Bad taste in mouth

Any ideas for getting rid of the bad metallic taste in mouth during and after chemo? Sweets are not…See More
18 hours ago

Top Content 

1 Chemotheraphy for Synovial Sarcoma

Chemotheraphy for Synovial Sarcoma

Posted by Rumba on December 1, 2014

2 Your experiences with pain?

Your experiences with pain?

Posted by Katie on November 19, 2014

3 new to site ansd scared silly

new to site ansd scared silly

Posted by Ellen on December 2, 2014

4 60 Minute Episode on genomic sequencing

60 Minute Episode on genomic sequencing

Posted by Aperez on December 11, 2014

5 Treatment for lung mets

Treatment for lung mets

Posted by George on December 2, 2014

 
 
 

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Blog Posts

Sarcoma Registry

Posted by Elodie Espesset on December 16, 2014 at 9:44am 3 Comments

There is a new sarcoma registry from University of Iowa Carver College of Medicine which is recording patient's quality of life:…

Continue

Systemic Treatment of Metastatic Soft Tissue Sarcoma

Posted by Elodie Espesset on December 7, 2014 at 11:18am 0 Comments

The following article discusses the different types of chemo, targeted therapies for the different types of soft tissue sarcoma, including synovial sarcoma. A "must read" in my opinion...…

Continue

Wrong direction

Posted by darken9 on November 27, 2014 at 9:09am 0 Comments

IF you saw a great artist trying to paint but failing because he was blindfolded would you help by taking off the blindfold or hold his wrist and try move it in the right direction? 

This seems to be what we are doing with our entire…

Continue

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