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WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

It's back ........what do you try after Votrient?

Started by jimK in Treatment Options. Last reply by Elodie Espesset 12 hours ago. 21 Replies

Votrient worked for 21 months. Can anyone suggest a clinical trial in the Chicago area? Or any t-Cell research? I need a couple more years to get my kids through collage.JimContinue

Trials

Started by Adrienne in General. Last reply by Elodie Espesset on Friday. 3 Replies

My husband has arrived at this stage. Does anyon know of any trials going on for SS w/lung mets? Votrient is no longer working. Onco suggested either GemTax or Iribulin. A word on either of those is helpful as well. Tough times. Thanks in advance.

Metastatic synovial sarcoma to the lungs

Started by Jtrevmil in General. Last reply by Elodie Espesset on Thursday. 12 Replies

Hello.  I am new to the group, as far as a member, but I have been following the discussions for some time. I was diagnosed with synovial sarcoma in my thigh in June of 2014, after 4 months of a misdiagnosis (that's a long story!).  I went through…Continue

Continued....

Started by Jtrevmil in General. Last reply by Elodie Espesset May 18. 1 Reply

Forgot to add that I had radiation following my initial surgery in 2014. Continue

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Latest Activity


Moderator
Elodie Espesset replied to jimK's discussion It's back ........what do you try after Votrient?
"jimK did proceed with the trial and he wrote about his experience on this…"
12 hours ago
Rumba replied to jimK's discussion It's back ........what do you try after Votrient?
"Hi, did anyone proceed with T-Cell therapy? My husband has done HLA testing and he is suitable. Now…"
20 hours ago
Eagle liked ufonaut's discussion The "Mental"
yesterday
Eagle posted a status
"He has decided to continue with 3 more rounds and get scanned again after. He has had a rough time but they reduced the dosage by 25%"
yesterday

Top Content 

1 Metastatic synovial sarcoma to the lungs

Metastatic synovial sarcoma to the lungs

Posted by Jtrevmil on May 17, 2016

2 Trials

Trials

Posted by Adrienne on May 20, 2016

3 Need an advice if I'm choosing right treatment. Synovial sarcoma left leg below the knee

Need an advice if I'm choosing right treatment. Synovial sarcoma left leg below the knee

Posted by Ivan on April 25, 2016

4 Continued....

Continued....

Posted by Jtrevmil on May 17, 2016

5 Lung nodule in ct

Lung nodule in ct

Added by Sean Smith on May 2, 2016

 
 
 

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Blog Posts

Has anyone been through the genetically modified T-Cell trial?

Posted by jimK on April 30, 2014 at 7:00pm 55 Comments

I've met the blood and tumor qualifications and have an appointment at NIH on May 15th for additional testing to qualify for "A Pilot Study of Genetically Engineered NY-ESO-1 Specific (c259) T Cells in HLA-A2+ Patients With Synovial…

Continue

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