May 2013 Community Newsletter
Dear SynovialSarcomaSurvivors Family and Friends,Celebrating Awareness Months for specific rare…See More
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WHAT IS SYNOVIAL SARCOMA?
Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints. Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.
This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs. Despite its name, it seldom arises within a joint.
Forum
Stage IV Synovial Sarcoma
Started by Michael Stangel in General. Last reply by Elodie Espesset on Thursday. 15 Replies 1 Like
I am a 44 year old man in Alaska, and it was suspected that I had a 8cm sarcoma on my abdominal wall with hypodense lesion metastases to the liver on Jan 10, 2013. The sarcoma was confirmed after a…Continue
The pain is over
Started by Traceyb in General. Last reply by Traceyb on Wednesday. 24 Replies 1 Like
I just wanted to post and let the group know that my husband Ed lost his battle this past Sunday, Feb. 3. It still does not seem real and I am numb. We will get through.Thank you to this group for…Continue
marinol vs megace
Started by teddy in General. Last reply by Traceyb on Wednesday. 4 Replies 1 Like
anyone have any input into which is safer for synovial sarcoma pts to increase appetite, especially those on votrient?Continue
Could Synovial sarcoma be caused by a mutated gene?
Started by surviver Sally in General. Last reply by Elodie Espesset on Wednesday. 1 Reply 0 Likes
I had read somewhere, I just don't remember where that said something to that effect. I've been trying to find that information again. Can anyone help me? Continue
Welcome To SynovialSarcomaSurvivors.org
If you or a loved one has been affected by Synovial Sarcoma this site is for you. The purpose of our community is to provide patients, families and friends affected with this cancer a place to find support, information, and most importantly a place to connect!
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This community is brought to you by BensFriends.org Patient Communities.
All are welcome to our community!
What you can do on Synovial Sarcoma Survivors:
1. Share your story on "My Page" & personalize it to reflect you.
2. Upload pictures & videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page.
*We are support only of patients for patients (family and friends), unless a person states otherwise, we are not doctors.
This community is brought to you by BensFriends.org Patient Communities.
Latest Activity
ModeratorElodie Espesset posted a blog post
Pediatric Patients and School
How about a stuffed monkey to help the youngest patients stay connected with their school while…See More
ModeratorElodie Espesset posted a blog post
For the Siblings of Children with Cancer
Here are some useful links that may help the siblings of pediatric patients:…See More
ModeratorElodie Espesset left a comment for Eileen Harris Nicholas Harris Mo
"Happy Birthday Eileen! I hope you are in good company and you can erase all the sad thoughts..."
ModeratorElodie Espesset replied to Michael Stangel's discussion Stage IV Synovial Sarcoma
"Keep the strong spirit up Michael! One day at a time..."
Traceyb replied to Traceyb's discussion The pain is over"Take everything at your own pace. I am still not back to work and don't plan on going back…"
Kat replied to Traceyb's discussion The pain is over"Thanks Tracey
Im sitting here listening to rain,which has been fairly steady in the last week.…"
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Good bye my babyAdded by Nell Vickers on May 12, 2013 |
| 2 |
Could you share a breif of you experience with Pazopanib a.k.a Votrient?Posted by Adam0 on May 1, 2013 |
| 3 |
GEMCITABINE and DACARBAZINE. Could you share your experience?Posted by glori on May 5, 2013 |
| 4 |
Avemar?Posted by imaFighter91 on May 15, 2013 |
| 5 |
Immune-based TherapiesPosted by Gavin on May 7, 2013 |
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Blog Posts
May 2013 Community Newsletter
Posted by Ben Munoz on May 25, 2013 at 6:40am 0 Comments 0 Likes
Dear SynovialSarcomaSurvivors Family and Friends,
Celebrating Awareness Months for specific rare diseases are a great way of procuring attention to our cause. By discussing our condition and helping to educate others, our active…
Continue
Pediatric Patients and School
Posted by Elodie Espesset on May 24, 2013 at 9:48am 0 Comments 0 Likes
How about a stuffed monkey to help the youngest patients stay connected with their school while they are going through treatment? Interesting idea:
For the Siblings of Children with Cancer
Posted by Elodie Espesset on May 23, 2013 at 9:16am 0 Comments 0 Likes
Here are some useful links that may help the siblings of pediatric patients:
ContinueHas anyone had radiation or surgery to a large mass in their lung?
Posted by Lynda on May 21, 2013 at 10:47pm 4 Comments 1 Like
Jaclyn's lungs have tumors scattered in them. There is a 4 inch wide one in her upper right lung and it's pressing against her heart. Jaclyn's Oncologist says he is going to check and see if surgery or radiation is possible to keep that tumor…
Continue
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