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WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

Yondelis/ Trabectedin side effects

Started by mlukeuk in General. Last reply by Jen R yesterday. 9 Replies

Hi everyone, I was hoping somebody could tell me what the yondelis side effects are actually like? What kind of life can you have whilst on the treatment ?Any info would be appreciated! Thanks :)Continue

Handling panic-attacks

Started by ChronicVT in General. Last reply by Synovialmom yesterday. 2 Replies

My Sarcoma returned after losing my right hand during my second bout. Well this third bout cost me my lung. I find myself waking up panting  heavily for air. My wife gives me a handful of meds, rubs my back and has to "baby me back to sleep", when…Continue

Can't get surgey, any other options?

Started by JulieK4 in Treatment Options. Last reply by Elodie Espesset yesterday. 10 Replies

So I am asking for a friend who has SS. Doctors said his heart is only working 44%. His tumor is wrapped around his heart so they can't perform surgery. He has already done many different forms of chemo, and his lifetime limit of radiation. Does…Continue

Lung mets

Started by Moopy in General. Last reply by Jen R yesterday. 6 Replies

Hi all , I was diagnosed ss in left ankle in December 14 had below knee amputation and all was well unfortunately CT and MRI show lung mets very small at present 4 mm , I have an appointment this week to discuss treatment options after PET scan but…Continue

Hello my fellow fighters

Started by JulieK4 in Emotional Support. Last reply by JulieK4 on Tuesday. 3 Replies

Hey guys!!Phew, I haven't logged on here in a while! Lately, I have been having "one of those days" where I kind of just think about life and all that I have endured. I am sure I am not the ONLY one haha. I was curious if any of you guys have had SS…Continue

Circulating Tumor Cells in Synovial Sarcoma

Started by Elodie Espesset in Clinical Trials and Research Updates on Sunday. 0 Replies

In the following study, circulating tumor cells were found in the blood of all 6 synovial sarcoma patients:http://www.ncbi.nlm.nih.gov/pubmed/25258541This was a study on a small number of…Continue

Pneumothorax and Votrient

Started by Elodie Espesset in Clinical Trials and Research Updates on Sunday. 0 Replies

A study from the Netherlands discusses the incidence of pneumothorax in patients with sarcoma lung mets who are receiving votrient:http://www.ncbi.nlm.nih.gov/pubmed/25302110Continue

Tags: pazopanib

EPZ-6438 (E7438)

Started by Elodie Espesset in Clinical Trials and Research Updates on Sunday. 0 Replies

Epizyme presented results of a pre-clinical study of its EZH2 inhibitor EPZ-6438 in models of synovial sarcoma at the CTOS meeting in 2014:…Continue

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Latest Activity

George liked jsinder's discussion Yondelis
yesterday
Jen R replied to mlukeuk's discussion Yondelis/ Trabectedin side effects
"You know, I just realized one bigger thing that I keep forgetting to mention: One bigger side…"
yesterday
Jen R replied to mlukeuk's discussion Yondelis/ Trabectedin side effects
"YES, 100%!! I still work full-time. I take off the two days I'm getting my infusion, mostly…"
yesterday
mlukeuk replied to mlukeuk's discussion Yondelis/ Trabectedin side effects
"Thanks for the info Jen, what kind of quality of life do you have now on the treatment? can you…"
yesterday
Jen R replied to mlukeuk's discussion Yondelis/ Trabectedin side effects
"Hi George! I'm so sorry to hear about your husband's bad reaction to AIM. I was very…"
yesterday
George replied to mlukeuk's discussion Yondelis/ Trabectedin side effects
"Hi Jen Did you try AIM before Yondelis? If so, how did you tolerate that? My husband is trying…"
yesterday
Synovialmom replied to ChronicVT's discussion Handling panic-attacks
"Prayer is the best solution.Try putting on some soft music like Enya or classical. Get an…"
yesterday

Moderator
Elodie Espesset replied to JulieK4's discussion Can't get surgey, any other options?
"Julie, Kevin's brother passed away :-("
yesterday

Top Content 

1 my daughter got a ned status

my daughter got a ned status

Posted by rk on June 20, 2015

2 Handling panic-attacks

Handling panic-attacks

Posted by ChronicVT on June 29, 2015

3 Unable to update my profile

Unable to update my profile

Posted by DeborahBP on June 13, 2015

4 Yondelis/ Trabectedin side effects

Yondelis/ Trabectedin side effects

Posted by mlukeuk on June 30, 2015

5 TRC105

TRC105

Posted by Elodie Espesset on June 11, 2015

 
 
 

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Blog Posts

Has anyone been through the genetically modified T-Cell trial?

Posted by jimK on April 30, 2014 at 7:00pm 53 Comments

I've met the blood and tumor qualifications and have an appointment at NIH on May 15th for additional testing to qualify for "A Pilot Study of Genetically Engineered NY-ESO-1 Specific (c259) T Cells in HLA-A2+ Patients With Synovial…

Continue

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