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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.

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WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

Where do we start?

Started by HopeandFaith in General. Last reply by HopeandFaith yesterday. 8 Replies

My 14 y/o son was diagnosed Sept 29. Not knowing it was cancer, we spent 2 years trying to find a doctor who would help him with his pain. Finally an Orthopedic doctor removed the cyst on his ankle…Continue

Hello to All

Started by Joe in General. Last reply by beechreader yesterday. 11 Replies

Hello all,I am glad to have found this group.  I will be turning 40 in October and was diagnosed in April of 2013 when I was 38.  I had Neck pain for quite a while and headaches many times a week for…Continue

My son's song about dealing with synovial sarcoma

Started by DeborahBP in General. Last reply by DeborahBP on Sunday. 6 Replies

Hi everyone:Recently my 23-year-old son was granted a weeklong respite by a wonderful charity for young sarcoma patients, ages 18-24, called the Nikolas Ritschel Foundation, To thank them Drake…Continue

Tags: fighting, for, you, Ritschel, Nikolas

New diagnosis and little information

Started by dajebriza in General. Last reply by BB Oct 25. 5 Replies

Thank goodness for this site.  My daughter was recently diagnosed.  Two weeks ago.  There is so little information right now we are just waiting.  Luckily she is close to a sarcoma center in…Continue

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Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

  • Share your story on "My Page" & personalize it to reflect you.
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  • Welcome new members with a comment on their page.

* We only offer peer-to-peer support (patients, family and friends). Unless a person states otherwise, we are not doctors.

This site is brought to you by Ben's Friends Patient Communities.

Latest Activity


Moderator
Elodie Espesset left a comment for Ziasper
"Happy Birthday Ziasper :-)"
8 hours ago

Moderator
Elodie Espesset left a comment for Nasheet
"Happy Birthday Nasheet!"
8 hours ago

Moderator
Elodie Espesset left a comment for jaysdad
"Happy Birthday :-)"
8 hours ago
HopeandFaith replied to HopeandFaith's discussion Where do we start?
"Thanks Elodie for the info. The publication will be a good read for my husband and myself."
yesterday

Moderator
Elodie Espesset replied to HopeandFaith's discussion Where do we start?
"Here is a list of proton therapy centers: http://www.proton-therapy.org/map.htm And here is a…"
yesterday
HopeandFaith replied to HopeandFaith's discussion Where do we start?
"I appreciate the info from all of you. So far what I have found is the doctors know enough about it…"
yesterday

Moderator
Elodie Espesset replied to HopeandFaith's discussion Where do we start?
"I know somebody who had isolated limb infusion in France but I don't know anybody in the US. I…"
yesterday
beechreader replied to Joe's discussion Hello to All
"I am 19 years cancer fee i my neck..... s s in my neck. You can survive this."
yesterday

Top Content 

1 Round 1 of chemo

Round 1 of chemo

Posted by jsinder on October 14, 2014

2 New here, new to SS

New here, new to SS

Posted by Sonnut on October 5, 2014

3 Next Treatment?

Next Treatment?

Posted by Trish on October 11, 2014

4 Immunotherapy for SS in lungs

Immunotherapy for SS in lungs

Posted by mary on October 16, 2014

5 Where do we start?

Where do we start?

Posted by HopeandFaith on October 28, 2014

 
 
 

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Blog Posts

Ben's Friends Monthly Newsletter - October 2014 Issue

Posted by Ben Munoz on October 25, 2014 at 9:42am 0 Comments

Just the Stats:

Communities: 38

Friends: 43,500+

Connecting to others in a similar circumstance is helpful to decrease depression, anxiety,…

Continue

Combining Radiotherapy With Targeted Therapy

Posted by Elodie Espesset on October 21, 2014 at 12:48pm 0 Comments

The following publication explains the potential benefits of combining radiotherapy with targeted therapy:…

Continue

EPZ-6438 (E7438)

Posted by Elodie Espesset on October 18, 2014 at 2:00pm 0 Comments

 Epizyme just presented results of a pre-clinical study of its EZH2 inhibitor EPZ-6438 in models of synovial sarcoma:…

Continue

Pneumothorax and Votrient

Posted by Elodie Espesset on October 11, 2014 at 10:07am 0 Comments

A new study from the Netherlands discusses the incidence of pneumothorax in patients with sarcoma lung mets who are receiving votrient:…

Continue

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