Welcome! You're not alone.

If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.


1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Need a Doctor or Specialist?

Need a Second Opinion?


All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.   
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. S
pecific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.
Thanks for your cooperation.

Learn More About Synovial Sarcoma

Brought to you by Patient Power.

ClinicalTrials.gov Studies

Loading… Loading feed


  • Add Photos
  • View All


  • Add Videos
  • View All

Your Community Moderators

Gift Store




Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.


A thank-you to Elodie

Started by dancermom in General. Last reply by glori 3 hours ago. 2 Replies

Today marks Elodie's four-year anniversary on this community. Thank you, Elodie, for all of your hard work supporting our members here on the Synovial Sarcoma network. You are a very special person!Continue

Another battle lost

Started by Adriana in General. Last reply by Elodie Espesset 7 hours ago. 1 Reply

Here is the link to my husbands obituary:http://www.porterloring.com/memsol.cgi?user_id=1404667Continue

Immune-based Therapies

Started by Gavin in General. Last reply by Cathy yesterday. 16 Replies

Hi,Have anyone tried Immune-based Therapies or do you have any feedback regarding this new therapy? This therapy is being performed at University of Washington by Dr. Seth Pollack.Thanks,GavinContinue


Started by SSWife in General. Last reply by Elodie Espesset on Sunday. 3 Replies

My beautiful husband passed away 3 weeks ago tomorrow - devastated does not even begin to explain how I feel. I hope and pray that they find a cure for this terrible disease before it robs more young…Continue

Ben's Friends Member Survey

Thank you for taking time to participate in our survey.  We are so grateful that more than 1000 of you responded! We are now working on analyzing the data. We'll let you know of the survey results soon.

Mobile App and E-Book Available!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

  • Share your story on "My Page" & personalize it to reflect you.
  • Upload pictures & videos easily.
  • Start a new discussion on "Forum" or contribute to existing discussions.
  • Welcome new members with a comment on their page.

* We only offer peer-to-peer support (patients, family and friends). Unless a person states otherwise, we are not doctors.

This site is brought to you by Ben's Friends Patient Communities.

Latest Activity

glori replied to dancermom's discussion A thank-you to Elodie
"Thank you for sharing information with others! There you can find support and knowledge about new…"
3 hours ago
surviver Sally replied to dancermom's discussion A thank-you to Elodie
"Thank you Elodie for all that you do, I do appreciate you."
4 hours ago
surviver Sally liked dancermom's discussion A thank-you to Elodie
4 hours ago
mammoth shared dancermom's discussion on Facebook
4 hours ago
mammoth liked dancermom's discussion A thank-you to Elodie
4 hours ago

dancermom's discussion was featured

A thank-you to Elodie

Today marks Elodie's four-year anniversary on this community. Thank you, Elodie, for all of your…See More
4 hours ago

dancermom posted a discussion

A thank-you to Elodie

Today marks Elodie's four-year anniversary on this community. Thank you, Elodie, for all of your…See More
4 hours ago

Elodie Espesset left a comment for surviver Sally
"Happy Birthday Surviver Sally! Are you still cancer free?"
7 hours ago

Top Content 

1 New here and newly diagnosed with Synovial Sarcoma

New here and newly diagnosed with Synovial Sarcoma

Posted by Starry1982 on August 19, 2014

2 Hello to All

Hello to All

Posted by Joe on September 8, 2014

3 Devastation


Posted by SSWife on September 13, 2014

4 Immune-based Therapies

Immune-based Therapies

Posted by Gavin on May 7, 2013

5 A thank-you to Elodie

A thank-you to Elodie

Posted by dancermom on September 16, 2014


Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Help Us Help Others

To Support SynovialSarcomaSurvivors.org, Click an Ad. Or Two.

Bens Friends

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

Join Ben's Friends

Blog Posts

Insurance Issues

Posted by Elodie Espesset on September 14, 2014 at 10:52am 1 Comment

Sometimes you need help to fight against insurance decisions. Here is an example of a synovial sarcoma patient who had an amputation. The insurance didn't want to pay for his prosthetic leg. The Legal Information Network for Cancer got involved…


ESMO Guidelines for Diagnosis, Treatment and Follow-up

Posted by Elodie Espesset on September 13, 2014 at 9:42am 0 Comments

These are the European guidelines for adult soft tissue sarcoma diagnosis, treatment and follow-up:…


Phase 1 Study of MPDL3280A

Posted by Elodie Espesset on September 13, 2014 at 9:37am 0 Comments

Is anybody on this trial?


Cathy's husband may join if he is found eligible...


BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service