Welcome! You're not alone.

If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.


1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group
6. Follow us on Twitter
7. Become a fan to our Facebook

Got some QUESTIONS? 
Check our FAQ PAGE.

Read More from our  First-Time-User Guide.

Concerned About Privacy

Since content and usernames are searchable on this site, you may protect your anonymity by creating a unique username.

To change username, click here. 


Need a Doctor or Specialist?


All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.

Please Be Kind & Use Appropriate Language

Let's Keep it Nice & Clean
1. No Spam
2. No Personal attacks
3. No Offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos)
4. No Profanity, sexual references and illegal activity subject matter in the Chat Room.   
5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. S
pecific doctor or hospital names in a positive context are welcome.
6. No sharing of members' posts to other sites without their express permission.
7. There are many sites for discussing religion and politics. This is not one of them. Divisive posts about religion and politics will be deleted.
Thanks for your cooperation.

Learn More About Synovial Sarcoma

Brought to you by Patient Power.

ClinicalTrials.gov Studies

Loading… Loading feed



Your Community Moderators

Gift Store




Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.



Started by Taz in General. Last reply by jsinder 9 hours ago. 5 Replies

Hello Everybody,   I've been reading this site since June when I had a 8cm tumor removed from my trunk and a resection of my right lung.  After 30 treatments of radiation I know have tumors again my…Continue

Palliative radiation for pain

Started by Groovy in General. Last reply by Groovy 12 hours ago. 4 Replies

My son has a very large tumor in his leg, as well as over 20 in his lungs. He is currently on hospice, fighting to regain strength to continue the fight. He is in a lot of pain, and the dr is…Continue


Started by SpaceGirlincognito in General. Last reply by Victoria's mom 14 hours ago. 7 Replies

Hey everyone. Thought I'd introduce myself a little bit and join in the talking :)I've been so glad to read your stories and advice as my husband begins his fight.His tumor (in the center of his…Continue

Tags: doxorubicin, ifosfamide, pazopanib

Bad taste in mouth

Started by Kelly in General. Last reply by Robert on Thursday. 4 Replies

Any ideas for getting rid of the bad metallic taste in mouth during and after chemo? Sweets are not tolerable.

Ben's Friends Member Survey

Thank you for taking time to participate in our survey.  We are so grateful that more than 1000 of you responded! We are now working on analyzing the data. We'll let you know of the survey results soon.

Mobile App and E-Book Available!

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!

Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

  • Share your story on "My Page" & personalize it to reflect you.
  • Upload pictures & videos easily.
  • Start a new discussion on "Forum" or contribute to existing discussions.
  • Welcome new members with a comment on their page.

* We only offer peer-to-peer support (patients, family and friends). Unless a person states otherwise, we are not doctors.

This site is brought to you by Ben's Friends Patient Communities.

Latest Activity

jsinder replied to Taz's discussion Chemo
"Have you seen any results with the vaccine so far? We have been looking into that trial."
9 hours ago
Groovy replied to Groovy's discussion Palliative radiation for pain
"Thanks for the information."
12 hours ago

Elodie Espesset left a comment for docvy
"Happy Birthday docvy :-) Your blog is really nice :-)"
12 hours ago
glori replied to Groovy's discussion Palliative radiation for pain
"My mother had palliative radiation as well. The pain was reduced and it was a big relief at least…"
12 hours ago
Victoria's mom replied to SpaceGirlincognito's discussion Pazopanib?
"My daughter had synovial sarc I her leg. Responded well to Doxy/Ifos and radiation. The tumor was…"
14 hours ago

jimK left a comment for Andrea
"Hello and welcome Andrea. So mice to meet another long term survivor. They group is very…"
Scott Orn left a comment for 1185Bco
"Wonderful welcome 1185! One tip, if you have specific questions it's best to start a New…"
Scott Orn left a comment for Groovy
"Great name Groovy! Welcome! One tip, if you have specific questions it's best to start a New…"

Top Content 

1 Chemotheraphy for Synovial Sarcoma

Chemotheraphy for Synovial Sarcoma

Posted by Rumba on December 1, 2014

2 new to site ansd scared silly

new to site ansd scared silly

Posted by Ellen on December 2, 2014

3 Pazopanib?


Posted by SpaceGirlincognito on December 15, 2014

4 60 Minute Episode on genomic sequencing

60 Minute Episode on genomic sequencing

Posted by Aperez on December 11, 2014

5 Bad taste in mouth

Bad taste in mouth

Posted by Kelly on December 16, 2014


Help Ben's Friends

Like & Follow Us!

Follow Me on Pinterest

Give Us A Review

Help Us Help Others

To Support SynovialSarcomaSurvivors.org, Click an Ad. Or Two.

Bens Friends

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for information on where to call.

Join Ben's Friends

Blog Posts

Sarcoma Registry

Posted by Elodie Espesset on December 16, 2014 at 9:44am 3 Comments

There is a new sarcoma registry from University of Iowa Carver College of Medicine which is recording patient's quality of life:…


Systemic Treatment of Metastatic Soft Tissue Sarcoma

Posted by Elodie Espesset on December 7, 2014 at 11:18am 0 Comments

The following article discusses the different types of chemo, targeted therapies for the different types of soft tissue sarcoma, including synovial sarcoma. A "must read" in my opinion...…


Wrong direction

Posted by darken9 on November 27, 2014 at 9:09am 0 Comments

IF you saw a great artist trying to paint but failing because he was blindfolded would you help by taking off the blindfold or hold his wrist and try move it in the right direction? 

This seems to be what we are doing with our entire…



BensFriends.org is proud to partner with a number of organizations to help our members in various areas, including legal, financial, research and medical. 

Know more about our PARTNERSvisit this link.

© 2014   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service