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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.

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WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

A thank-you to Elodie

Started by dancermom in General. Last reply by glori 3 hours ago. 2 Replies

Today marks Elodie's four-year anniversary on this community. Thank you, Elodie, for all of your hard work supporting our members here on the Synovial Sarcoma network. You are a very special person!Continue

Another battle lost

Started by Adriana in General. Last reply by Elodie Espesset 7 hours ago. 1 Reply

Here is the link to my husbands obituary:http://www.porterloring.com/memsol.cgi?user_id=1404667Continue

Immune-based Therapies

Started by Gavin in General. Last reply by Cathy yesterday. 16 Replies

Hi,Have anyone tried Immune-based Therapies or do you have any feedback regarding this new therapy? This therapy is being performed at University of Washington by Dr. Seth Pollack.Thanks,GavinContinue

Devastation

Started by SSWife in General. Last reply by Elodie Espesset on Sunday. 3 Replies

My beautiful husband passed away 3 weeks ago tomorrow - devastated does not even begin to explain how I feel. I hope and pray that they find a cure for this terrible disease before it robs more young…Continue

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Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

  • Share your story on "My Page" & personalize it to reflect you.
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  • Start a new discussion on "Forum" or contribute to existing discussions.
  • Welcome new members with a comment on their page.

* We only offer peer-to-peer support (patients, family and friends). Unless a person states otherwise, we are not doctors.

This site is brought to you by Ben's Friends Patient Communities.

Latest Activity

glori replied to dancermom's discussion A thank-you to Elodie
"Thank you for sharing information with others! There you can find support and knowledge about new…"
3 hours ago
surviver Sally replied to dancermom's discussion A thank-you to Elodie
"Thank you Elodie for all that you do, I do appreciate you."
4 hours ago
surviver Sally liked dancermom's discussion A thank-you to Elodie
4 hours ago
mammoth shared dancermom's discussion on Facebook
4 hours ago
mammoth liked dancermom's discussion A thank-you to Elodie
4 hours ago

Moderator
dancermom's discussion was featured

A thank-you to Elodie

Today marks Elodie's four-year anniversary on this community. Thank you, Elodie, for all of your…See More
4 hours ago

Moderator
dancermom posted a discussion

A thank-you to Elodie

Today marks Elodie's four-year anniversary on this community. Thank you, Elodie, for all of your…See More
4 hours ago

Moderator
Elodie Espesset left a comment for surviver Sally
"Happy Birthday Surviver Sally! Are you still cancer free?"
7 hours ago

Top Content 

1 New here and newly diagnosed with Synovial Sarcoma

New here and newly diagnosed with Synovial Sarcoma

Posted by Starry1982 on August 19, 2014

2 Hello to All

Hello to All

Posted by Joe on September 8, 2014

3 Devastation

Devastation

Posted by SSWife on September 13, 2014

4 Immune-based Therapies

Immune-based Therapies

Posted by Gavin on May 7, 2013

5 A thank-you to Elodie

A thank-you to Elodie

Posted by dancermom on September 16, 2014

 
 
 

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Blog Posts

Insurance Issues

Posted by Elodie Espesset on September 14, 2014 at 10:52am 1 Comment

Sometimes you need help to fight against insurance decisions. Here is an example of a synovial sarcoma patient who had an amputation. The insurance didn't want to pay for his prosthetic leg. The Legal Information Network for Cancer got involved…

Continue

ESMO Guidelines for Diagnosis, Treatment and Follow-up

Posted by Elodie Espesset on September 13, 2014 at 9:42am 0 Comments

These are the European guidelines for adult soft tissue sarcoma diagnosis, treatment and follow-up:…

Continue

Phase 1 Study of MPDL3280A

Posted by Elodie Espesset on September 13, 2014 at 9:37am 0 Comments

Is anybody on this trial?

http://clinicaltrials.gov/show/NCT01375842

Cathy's husband may join if he is found eligible...

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