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Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.



Started by mlukeuk in Personal Experience with Clinical Trials. Last reply by Cherylteach 3 hours ago. 10 Replies

Who can give me some info on pembrolizumab? Has anyone tried it? Or on it currently?

Chemo reaction. Need some perspective pls

Started by George in Chemo. Last reply by Kelli Thomas 5 hours ago. 13 Replies

So my husband had one round of inpatient AIM last summer as adjuvant following surgery to amputate his right arm and clean scans. Got neutropenia right away and back in hospital for another week. He…Continue

Lung mets

Started by Moopy in General. Last reply by Darren 6 hours ago. 4 Replies

Hi all , I was diagnosed ss in left ankle in December 14 had below knee amputation and all was well unfortunately CT and MRI show lung mets very small at present 4 mm , I have an appointment this…Continue

Chemotheraphy for Synovial Sarcoma

Started by Rumba in Chemo. Last reply by Otis B on Saturday. 23 Replies

My husband had three cylces of chemotherapy ( doxurubicin, Ifosfamide, mesna, dacarbazine). In his case (synovial sarcoma- right knee) Chemoteraphy didn't work. The response to chemo was minimal.…Continue

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Latest Activity

Cherylteach replied to mlukeuk's discussion Pembrolizumab
"I have thyroid cancer that metastasized to my lungs. There has been no one who survives this stage,…"
3 hours ago
Kelli Thomas replied to George's discussion Chemo reaction. Need some perspective pls
"There are also sarcoma trials at Johns Hopkins"
5 hours ago
johnf replied to mlukeuk's discussion Pembrolizumab
"Congrats to both of you, Kelly and Cheryl. This is all so exciting for us all. A little update on…"
6 hours ago
George replied to George's discussion Chemo reaction. Need some perspective pls
"Thank you! Much appreciated"
6 hours ago
Darren replied to Moopy's discussion Lung mets
"Hi Moopy! Please move forward and fight against this disease, it will be worth it! I was diagnosed…"
6 hours ago
Profile IconSynovial Sarcoma - Online Support Group now has groups
9 hours ago
Profile IconSynovial Sarcoma - Online Support Group now has photos
9 hours ago
Profile IconSynovial Sarcoma - Online Support Group now has blogs
9 hours ago

Top Content 

1 Every one's story is so unique, so here is mine. (survivors who chose no treatment, please read)

Every one's story is so unique, so here is mine. (survivors who chose no treatment, please read)

Posted by Michelle on April 28, 2015

2 Chemo reaction. Need some perspective pls

Chemo reaction. Need some perspective pls

Posted by George on April 30, 2015

3 I did it

I did it

Posted by Johnboy Esq on May 6, 2015

4 metastasis into lymph node

metastasis into lymph node

Posted by Alicia on May 5, 2015

5 Pembrolizumab


Posted by mlukeuk on May 12, 2015


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Blog Posts

How Great is My God!

Posted by Devon on April 2, 2015 at 6:11pm 7 Comments

WOW! Less than 24 hours after deciding that CHOP is where I want to be treated they call us with glorious news. 

They met as an entire team today and have decided that they want to delay chemotherapy!! They are going to do more tests and determine where (if anywhere) any remaining cells are within my body before attacking my cells with an extremely powerful chemotherapy. They feel confident that the .5cm tumor in my right pleura was resected with margins and are also exploring the…


Local Fundraiser for Ben's Friends

Posted by Scott Orn on March 22, 2015 at 10:34am 0 Comments

I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends."

It was a big success as we raised $1,225 for Ben's Friends. There were about 80 people there, all from my friends' network. Many people came up to me and told me how a family member or friend had been touched by a rare disease and how they were going to tell their loved one…



Posted by Kelly on March 17, 2015 at 6:28pm 0 Comments

Has anyone participated in an immunotherapy trial with Pembrolizumab?

Hypoxia, Glucose Deprivation, HIGD1A and Tumor dormancy

Posted by Elodie Espesset on March 4, 2015 at 10:47am 0 Comments

According to a new study, Hypoxia-Inducible Gene Domain Family Member 1A (HIGD1A) may be instrumental in cancer cells ability to survive hypoxia and glucose deprivation:


The following news article summarizes the findings and relevance of the study:…



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