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WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

shadows on the lungs

Started by francess in General. Last reply by Elodie Espesset 13 hours ago. 11 Replies

Hi Guys,we have just returned from our sons first 6 mth checkup , to discover that he has a shadow on each of his lungs , and is now set to have a CT scan tomorrow to clarify what they are.........needless to say we are terrified, and I just want to…Continue

NY-ESO trial at SCCA

Started by Andy in General. Last reply by Caelan's grandma on Friday. 1 Reply

I am going to Seattle to Fred Hutchinson to take part in this vaccine trial next week. Specifically targets Synovial Sarcoma. Will update.Here is the link to the big words…Continue

Vaccine Trial LV305

Started by mary in Personal Experience with Clinical Trials. Last reply by Caelan's grandma on Friday. 13 Replies

Just finished the vaccine trial for 3 nodules in my lungs.I had the vaccines every 3 weeks over a 4 month period.I did not experience any side effects from the vaccine.They give you 8 shots per visit, 2 in each arm and 2 in each leg.They inject…Continue

Keytruda

Started by Firefly in Treatment Options. Last reply by Elodie Espesset Aug 21. 4 Replies

So new to this site and I have been jumping around looking for people who have used Keytruda and I am seeing a few people who have recently started in trials or hoping to get into one.  I am just curious if anyone has results back?  Also, regarding…Continue

Gem/Tax Combo Experience

Started by Katie T in Treatment Options. Last reply by Kelly Aug 21. 9 Replies

For those of you who have tried this combo can you share your experiences? What are the side effects like?  We really selfishly want to squeeze in a family vacation if Dan is feeling up to it.   Dan is getting his port tomorrow and will start this…Continue

last resort treatments

Started by Kaiowas in General. Last reply by Taz Aug 18. 11 Replies

Hi everyone,not sure if this is the place but here comes my question.Some background infoseptember 2011: 15cm tumor in my leg, No metastases and surgeeryBut in 2012 is started ifosfamide/doxorubicine treatement for metastases in the lung. Nearly…Continue

What types of treatment are you having success with?

Started by KimmyK in Treatment Options. Last reply by Kaiowas Aug 17. 6 Replies

Hello all,I am in the stage where I have tried AIM, Ifosfamide alone, and Gem/Tax.  My Dr's next hope is for me to get into the Yondelis/Trabectedin trial.  The aniti PD-1 MK3475 is closed at the moment, but he also stated that they are not having…Continue

Tags: trials, oral, chemo, MK3475, Trabectedin

NY-ESO trial at SCCA

Started by Andy in Personal Experience with Clinical Trials. Last reply by Kaiowas Aug 17. 4 Replies

I am going to Seattle to Fred Hutchinson to take part in this vaccine trial next week. Specifically targets Synovial Sarcoma. Will update.Here is the link to the big words…Continue

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Latest Activity


Moderator
Elodie Espesset replied to francess's discussion shadows on the lungs
"Is the medication votrient? The situation doesn't sound good :-( A second opinion in such case…"
13 hours ago
francess replied to francess's discussion shadows on the lungs
"Hi all..... our worst fears have been confirmed..........he has two masses,one at least5cms on the…"
yesterday

Moderator
Elodie Espesset left a comment for Charlie Maly
"Welcome Charlie! Are you able to bicycle with your artificial knee and steel rod? Please feel free…"
yesterday
Charlie Maly is now a member of Synovial Sarcoma - Online Support Group
yesterday

Moderator
Elodie Espesset left a comment for Robert bique
"Welcome Robert! What's your treatment for the lung tumors so far? Please feel free to…"
Sunday
Caelan's grandma replied to Andy's discussion NY-ESO trial at SCCA
"Here's to success!"
Friday
Caelan's grandma replied to mary's discussion Vaccine Trial LV305
"KellyK, My Dr is Seth Pollack at SCCA.  At my check in June, my tumors were shrinking.…"
Friday
Caelan's grandma liked mary's discussion Vaccine Trial LV305
Friday

Top Content 

1 What types of treatment are you having success with?

What types of treatment are you having success with?

Posted by KimmyK on July 15, 2015

2 NY-ESO trial at SCCA

NY-ESO trial at SCCA

Posted by Andy on August 9, 2015

3 last resort treatments

last resort treatments

Posted by Kaiowas on August 13, 2015

4 Vaccine Trial   LV305

Vaccine Trial LV305

Posted by mary on April 14, 2015

5 mononucleosis after treatment?

mononucleosis after treatment?

Posted by dutch on August 7, 2015

 
 
 

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Blog Posts

Has anyone been through the genetically modified T-Cell trial?

Posted by jimK on April 30, 2014 at 7:00pm 53 Comments

I've met the blood and tumor qualifications and have an appointment at NIH on May 15th for additional testing to qualify for "A Pilot Study of Genetically Engineered NY-ESO-1 Specific (c259) T Cells in HLA-A2+ Patients With Synovial…

Continue

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