"How are you? Trying to stay positive. Ive got my 1st scan for 6 mths & since last op. I've been in a lovely oasis of good health/ ignorance?"
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Chemo Now or Later?
Started by VNN in General. Last reply by LindaC on Wednesday. 6 Replies 0 Likes
3 months ago, they found 2 nodules in my lung (6mm & 3mm). They were only able to removed the 6mm one since the 3mm was too small. Right now I'm a bit unsure of what to do. My cardiothoracic…Continue
Are there any other young children out there?
Started by Tristan's Mom, Paula in General. Last reply by BeardedDragon on Monday. 13 Replies 0 Likes
Hi, there. I'm new to the group. Our son was diagnosed with SS in 2011 when he was 7. Docs thought it was a benign but painful lump (can't remember if it was 10 or 15 mm long and not very thick)…Continue
Twitter Chat
Started by John "JC" Colyer in General. Last reply by John "JC" Colyer May 18. 2 Replies 0 Likes
Hope everybody is well.Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other communities on BF, share your experiences with a rare disease,…Continue
Synovial Sarcoma - Suggestions Please?!
Started by gormans22 in General. Last reply by Scott Orn May 18. 43 Replies 0 Likes
Hi, I'm Shannon and I'm 22yrs old and had a 2.5 cm tumor removed from the bottom of my left foot (near the arch) on March 14th. I found out it was synovial sarcoma on March 16th. Wednesday the 21st I…Continue
Welcome To SynovialSarcomaSurvivors.org
If you or a loved one has been affected by Synovial Sarcoma this site is for you. The purpose of our community is to provide patients, families and friends affected with this cancer a place to find support, information, and most importantly a place to connect!
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*We are support only of patients for patients (family and friends), unless a person states otherwise, we are not doctors.
This community is brought to you by BensFriends.org Patient Communities.
All are welcome to our community!
What you can do on Synovial Sarcoma Survivors:
1. Share your story on "My Page" & personalize it to reflect you.
2. Upload pictures & videos easily.
3. Start a new discussion on "Forum" or contribute to existing discussions.
4. Welcome our new members with a comment on their page.
*We are support only of patients for patients (family and friends), unless a person states otherwise, we are not doctors.
This community is brought to you by BensFriends.org Patient Communities.
WHAT IS SYNOVIAL SARCOMA?
Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints. Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.
This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs. Despite its name, it seldom arises within a joint.
Synovial sarcoma can spread (metastasize) to other areas of the body, particularly to involve regional lymph nodes. Metastasis to distant body tissues occurs in about half of all cases, usually months to years after the initial diagnosis is made, although they are at times present at diagnosis.
Synovial sarcoma is a rare tumor. It is one of many types of cancer classified as a soft tissue sarcoma, cancer that originates in soft tissue which includes fat, muscles, tendons, nerves, synovial tissue, blood vessels and other fibrous tissue. As a group, soft tissue sarcomas account for less than 1 percent of all new cancer cases each year.
www.childrenshospital.org
This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs. Despite its name, it seldom arises within a joint.
Synovial sarcoma can spread (metastasize) to other areas of the body, particularly to involve regional lymph nodes. Metastasis to distant body tissues occurs in about half of all cases, usually months to years after the initial diagnosis is made, although they are at times present at diagnosis.
Synovial sarcoma is a rare tumor. It is one of many types of cancer classified as a soft tissue sarcoma, cancer that originates in soft tissue which includes fat, muscles, tendons, nerves, synovial tissue, blood vessels and other fibrous tissue. As a group, soft tissue sarcomas account for less than 1 percent of all new cancer cases each year.
www.childrenshospital.org
Latest Activity
ModeratorElodie Espesset left a comment for loree
"It sounds like the surgery was quite invasive... Good luck with the full body scan!"
ModeratorElodie Espesset left a comment for Tms84
"Welcome Tms84! Your situation sounds difficult but it is good that the medical team is considering…"
ModeratorBen Munoz posted a blog post
May 2012 SynovialSarcomaSurvivors Community Newsletter
Dear Friends and Family of SynovialSarcomaSurvivors,We are so excited we cannot wait to tell you…See More
ModeratorJohn "JC" Colyer left a comment for Tms84
""Welcome Tms84 , I know you will connect with good people here that will offer you…"
miriam fitzmaurice commented on Elodie Espesset's blog post Nerve Transfer After Nerve Damage?"thanks Elodie, I will do that"
ModeratorElodie Espesset left a comment for lauram525
"Happy Birthday! Hope Timothy is still doing good!"
Top Content
| 1 |
Are there any other young children out there?Posted by Tristan's Mom, Paula on May 16, 2012 |
| 2 |
YondelisPosted by Gavin on May 7, 2012 |
| 3 |
Synovial Sarcoma - Suggestions Please?!Posted by gormans22 on March 26, 2012 |
| 4 |
AFINITOR (everolimus)Posted by Ellen on May 4, 2012 |
| 5 |
What would you do to comfort a sick friend?Posted by Armando Abrero on May 9, 2012 |
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Synovial Sarcoma - Online Support Group
New member says:
“Thanks for the welcome - it is my son who has sarcoma!”
Synovial Sarcoma - Online Support Group
New member says:
“Thanks for welcoming me!. I was recently diagnosed with synovial sarcoma. I just posted a discussion, if you have a second, could you please check it out?”
Synovial Sarcoma - Online Support Group
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May 2012 SynovialSarcomaSurvivors Community Newsletter
Posted by Ben Munoz on May 26, 2012 at 9:00am 0 Comments 0 Likes
Dear Friends and Family of SynovialSarcomaSurvivors,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
Continue
Tissue Donation
Posted by Elodie Espesset on May 24, 2012 at 9:30am 0 Comments 0 Likes
The National Disease Research Interchange (NDRI), a non-profit organization based in Philadelphia, PA, coordinates the collection and dissemination of human cells, tissues and organs to researchers and scientists. The Sarcoma Foundation of…
Continue2012 SFA Patient Educational Conference Video
Posted by Elodie Espesset on May 22, 2012 at 8:41am 0 Comments 0 Likes
The Sarcoma Foundation of America made a video of their last educational conference and it is available here:…
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OUR ONLINE PRESENCE IS GROWING!!!
Posted by Armando Abrero on May 22, 2012 at 7:10am 0 Comments 0 Likes
OUR ONLINE PRESENCE IS GROWING!!!
Check out this link to view Ben's Friends FB-Twitter Milestone.…
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