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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.

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About

 

WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

Sean Vikta & Blue Redefined Patient Organization Sponsors Ben's Friends

Started by Scott Orn in General. Last reply by Elodie Espesset 17 hours ago. 1 Reply

Thrilled to announce that Ben's Friends received a $1,500 donation from Sean Vitka and Blue Redefined (http://www.blueredefined.org/), a non profit patient…Continue

Got CT scan reports of my MOM , synovial sarcoma got cured

Started by krishna in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Laxman on Friday. 3 Replies

Hi , Told na today we will get results.Finally I am feeling happy , as Doc confirmed that tumor has been cured.Thing is we went for…Continue

Doctors Recommendations

Started by Elodie Espesset in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Ernesto Fonseca Jul 16. 15 Replies

Do you have a sarcoma oncologist, surgeon, radiologist, pathologist that you love? Please share. We would like to create a list from everyone's recommendations :-)Continue

Reading material while on Chemo...

Started by mammoth in General. Last reply by Elodie Espesset Jul 16. 5 Replies

My son in law will be starting chemo next Monday July 21/14... I was wondering if anybody could recommend a good book to read for him... I found one I thought may fit the bill called, Ask and it is…Continue

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Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.

Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

  • Share your story on "My Page" & personalize it to reflect you.
  • Upload pictures & videos easily.
  • Start a new discussion on "Forum" or contribute to existing discussions.
  • Welcome new members with a comment on their page.

* We only offer peer-to-peer support (patients, family and friends). Unless a person states otherwise, we are not doctors.

This site is brought to you by Ben's Friends Patient Communities.

Latest Activity

Scott Orn left a comment for George
"Hi George -  Huge welcome to the community! This is a great place! One tip, if you have…"
11 hours ago
dancermom left a comment for George
"Welcome, George, to this supportive community. Feel free to open a discussion to introduce yourself…"
14 hours ago
George is now a member of Synovial Sarcoma - Online Support Group
14 hours ago

Moderator
Elodie Espesset left a comment for Sheila
"Happy Birthday Sheila! Any new option came up for your son?"
17 hours ago

Moderator
Elodie Espesset replied to Scott Orn's discussion Sean Vikta & Blue Redefined Patient Organization Sponsors Ben's Friends
"Many thanks to Sean!"
17 hours ago

Moderator
Elodie Espesset left a comment for minion mom
"My synovial sarcoma was diagnosed in 2003. Most people who join the site are at end stage disease…"
17 hours ago
Scott Orn posted a discussion

Sean Vikta & Blue Redefined Patient Organization Sponsors Ben's Friends

Thrilled to announce that Ben's Friends received a $1,500 donation from Sean Vitka and Blue…See More
yesterday

Moderator
Elodie Espesset left a comment for minion mom
"How is he doing with the pain? I remember phantom pain was quite terrible for me the weeks…"
yesterday

Top Content 

1 Sad News

Sad News

Posted by Katie T on July 9, 2014

2 a transition

a transition

Posted by Bruce_S on July 4, 2014

3 Reading material while on Chemo...

Reading material while on Chemo...

Posted by mammoth on July 14, 2014

4 Got CT scan reports of my MOM , synovial sarcoma got cured

Got CT scan reports of my MOM , synovial sarcoma got cured

Posted by krishna on March 18, 2014

5 SS mollet masse de 10x 8x3

SS mollet masse de 10x 8x3

Posted by Guillou on July 8, 2014

 
 
 

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Blog Posts

2014 International Sarcoma Awareness Week

Posted by Elodie Espesset on July 16, 2014 at 4:32am 0 Comments

The Amschwand Sarcoma Cancer Foundation is organizing a sarcoma awareness walk on July 26th:

http://www.sarcomacancer.org/

My daughters Synovial Sarcoma is in her belly

Posted by Brenda Miele on July 12, 2014 at 8:02am 1 Comment

I've come to realize that there are no cases of children (my daughter is 10) that have this specific cancer where it has shown itself in her. Her scans and biopsy told the Doctors several things, first the type of cancer. The mass that developed is… Continue

July 2014 ESUN

Posted by Elodie Espesset on July 2, 2014 at 2:14pm 1 Comment

The last issue of ESUN came out:

http://sarcomahelp.org/esun.html

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