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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.
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Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints. Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.
This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs. Despite its name, it seldom arises within a joint.
Waiting is the worst, how do you cope with the stress of waiting? My husband has now had 7 cycles of doxo/ifos and 4 days of cyber knife - he had a pet ct scan done yesterday and now we wait for the…Continue
My daughter, Katie, started Pazopanib on November 2nd due to lung mets that are currently not operational. The pain she had before starting Pazopanib has stopped for the last two weeks. We hope…Continue
"At this special time of year, we are pleased to share words of hope and encouragement from people who have dealt with sarcomas." Christina's Story is a synovial sarcoma story. See…Continue
Metastatic disease has made me wonder many times if my family is ready for life without me. And have I done everything to make their transition to living without me easier? One of our member recently…Continue
We’re so proud to announce the release of the Ben’s Friends iPhone App!!!
Go to the App Store and download it now. To help others locate the app easier and enjoy online support, don't forget to give the app a 5-star rate review. Strong reviews like 5-star help bumps up Ben's Friends in the Apple's search result.
In the App, you can access all 35 support communities through the site and it’s perfect for staying in touch with your friends, info and support while on the go. In our beta tests, patient reported using it in doctor office waiting rooms and right after they were given a new diagnosis. The next feature in the App will be portable doctor reviews!
Posted by Trish on November 27, 2013
Added by zoe on November 22, 2013
Posted by Carrie V on November 6, 2013
Posted by Michael Stangel on November 27, 2013
Added by Yooper Girl on November 19, 2013
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Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to email@example.com.