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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.

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About

 

WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

Amputation of left arm next week

Started by Johnboy Esq in Emotional Support. Last reply by twinljp 5 hours ago. 16 Replies

I just spoke with my oncologist yesterday morning. After the last year and a half since diagnosis my tumor is still contained yet still growing, and some of my symptoms have been increasing as my…Continue

Newly Diagnosed and Scared!

Started by Devon in Newly Diagnosed. Last reply by Taz 6 hours ago. 11 Replies

Hello all,I'm Devon and I'm a senior in high school. Last week I was diagnosed after a surgeon biopsied the pleural lining of my lung during a seemingly unrelated surgery that was correcting a…Continue

Keeping looking for a surgeon or give up and go home?

Started by happythoughts22 in Treatment Options. Last reply by Meg 6 hours ago. 4 Replies

I previously posted a topic about looking for my brother who has synovial sarcoma. He's urgently looking for a surgeon or a final second opinion. Here's the post: …Continue

Tumor pain

Started by mlukeuk in Unexplained Symptoms. Last reply by Elodie Espesset on Sunday. 4 Replies

Has anyone heard of or experienced increased tumor pain during or just after chemotherapy?I've always been a symptomatic with regards to my lung mets but all of a sudden this week just after my chemo…Continue

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Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

  • Share your story on "My Page" & personalize it to reflect you.
  • Upload pictures & videos easily.
  • Start a new discussion on "Forum" or contribute to existing discussions.
  • Welcome new members with a comment on their page.

* We only offer peer-to-peer support (patients, family and friends). Unless a person states otherwise, we are not doctors.

This site is brought to you by Ben's Friends Patient Communities.

Latest Activity

twinljp replied to Johnboy Esq's discussion Amputation of left arm next week
"I am not sure where in your arm the tumor is not mine was in my right knee. My doctor removed the…"
5 hours ago
Taz replied to Devon's discussion Newly Diagnosed and Scared!
"Hi Devon,    I'm sorry you have to join this group but it offers great…"
6 hours ago
Meg replied to happythoughts22's discussion Keeping looking for a surgeon or give up and go home?
"How are things going with your brother? I have been thinking about you all! "
6 hours ago
SpaceGirlincognito replied to Devon's discussion Newly Diagnosed and Scared!
"Hi, Devon! Welcome to the group, sorry you have to join at all, but here are so many of us here who…"
9 hours ago
camiam replied to Devon's discussion Newly Diagnosed and Scared!
"Hi Devon,   When I had chemo we actually did it through the veins in my arm. There was talk of…"
9 hours ago
Kadie replied to Devon's discussion Newly Diagnosed and Scared!
"Devon, I'm so sorry to read about your diagnosis. The port shouldn't really be…"
10 hours ago
mlukeuk replied to Devon's discussion Newly Diagnosed and Scared!
"I'm a similar age to you, having the port put in is very unpleasant and it will feel strange…"
11 hours ago
beechreader replied to Devon's discussion Newly Diagnosed and Scared!
"There you are Devon jimk is 24 years. Keep positive I'm 20 years in October. "
12 hours ago

Top Content 

1 GEMCITABINE DOCETAXEL

GEMCITABINE DOCETAXEL

Posted by mlukeuk on March 18, 2015

2 Hi everyone!

Hi everyone!

Posted by JulieK4 on March 9, 2015

3 Toe Nails

Toe Nails

Posted by Sonnut on March 6, 2015

4 Can't get surgey, any other options?

Can't get surgey, any other options?

Posted by JulieK4 on March 20, 2015

5 Immunotherapy

Immunotherapy

Posted by Kelly on March 17, 2015

 
 
 

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Blog Posts

Local Fundraiser for Ben's Friends

Posted by Scott Orn on March 22, 2015 at 10:34am 0 Comments

I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends."

It was a big success as we…

Continue

Immunotherapy

Posted by Kelly on March 17, 2015 at 6:28pm 0 Comments

Has anyone participated in an immunotherapy trial with Pembrolizumab?

Hypoxia, Glucose Deprivation, HIGD1A and Tumor dormancy

Posted by Elodie Espesset on March 4, 2015 at 10:47am 0 Comments

According to a new study, Hypoxia-Inducible Gene Domain Family Member 1A (HIGD1A) may be instrumental in cancer cells ability to survive hypoxia and glucose deprivation:…

Continue

Better Not Discontinue Yondelis If Stable on It

Posted by Elodie Espesset on March 3, 2015 at 10:06am 0 Comments

A study of interruption versus continuation of yondelis after 6 cycles of stability under treatment suggests it's bad to discontinue the drug to take a break from it:…

Continue

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