Welcome! You're not alone.

Getting Started:

1. Become a Member
2. Make Friends
3. Post to a Forum
4. Read or write a Blog
5. Join or Create a Group


Check our FAQ PAGE and First-Time-User Guide.


Since site content and usernames are google searchable, please protect your anonymity by creating a unique username.

To change your username, click here. 


All of the material provided on this site is for informational purposes only and is not a substitute for professional medical advice or treatment. Always seek the advice of your physician or qualified health provider with any questions regarding your health. Do not disregard professional medical advice or delay seeking it because of something you read on this site.

Our Guidelines

Let's Keep it Nice & Clean
  1. Describe (share experiences), not Prescribe (suggest treatment for others).
  2. No spam.
  3. No personal attacks or defamatory posts.
  4. No offensive content (profanity, sexual references, illegal activity subject matter, pornographic material or photos).
  5. No specific doctor or hospital name mentioned in a negative context, for legal reasons. Specific doctor or hospital names in a positive context are welcome.
  6. No sharing of members' posts to other sites without their express permission.
  7. No solicitations or promotions of goods or services. No fundraising without the permission of the moderators.
  8. No email addresses or phone numbers on the forum, for your security.
  9. Please restrict religious content to the Prayer Group.
  10. No politics, please.

Thanks for your cooperation.

Your Community Moderators

Have a question, concern, or suggestion? Or would you like to volunteer?

Please send a private message to a moderator.



Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.


Nausea / When not recieving chemo

Started by STS_SS_Perdido in Side Effects of Treatment 7 hours ago. 0 Replies

Fininished the second round of Chemo. Ifosfamide / Doxorubicin. I have a 22cm tumor in my leg and has mets to my lungs. I go into hospital for 4 days 24X7 of Chemo. Then Home until numbers bounce back and allow Chemo again. I have not had this issue…Continue

Tags: Zofran

Hello, doubts, a little of everything...

Started by Heidis_Husband in Newly Diagnosed. Last reply by Elodie Espesset on Wednesday. 8 Replies

Hello, a couple of days ago I did a presention not unlike the one you'll be reading shortly in the Sarcoma Alliance Facebook. Some of you will know me, many others wont, even so... here is my story, or to put it right, my wife story, Heidi.Around 9…Continue


Started by Grammyps3 in Side Effects of Treatment. Last reply by Elodie Espesset on Wednesday. 5 Replies

I have just finished my first chemo treatment at the Dana Farber. I had 3 days of ifosfamide and doxorubicin. After 2 rounds they had to stop the ifosfamide due to some side effects that they were concerned about. I was very disappointed because I…Continue

one year later

Started by Ellen in General. Last reply by Elodie Espesset on Sunday. 18 Replies

It's been exactly one year since I had my terrorist removed from the left abdominal wall.  It's been a good year until now.  A new SS has developed on the right side just above/on the liver behind a rib.  I can actually feel it.  It's small, 2.5 x…Continue

Mobile App

Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now.

Latest Activity

STS_SS_Perdido posted a discussion

Nausea / When not recieving chemo

Fininished the second round of Chemo. Ifosfamide / Doxorubicin. I have a 22cm tumor in my leg and…See More
7 hours ago

Elodie Espesset replied to Heidis_Husband's discussion Hello, doubts, a little of everything...
"The popular theory is that angiogenesis inhibitors prevent tumor cells from making new blood…"
Heidis_Husband replied to Heidis_Husband's discussion Hello, doubts, a little of everything...
"Hi, I did reached a FB "private" group... which is being great, they directed me to MD…"

Elodie Espesset replied to Grammyps3's discussion Ifosfamide,doxorubicin
"Thanks for the update Yenessa! I hope it keeps working!"

Top Content 

1 Ifosfamide,doxorubicin


Posted by Grammyps3 on November 23, 2015

2 Our stories are important. Will you share yours?

Our stories are important. Will you share yours?

Posted by Elodie Espesset on November 12, 2015

3 Metastese2


Posted by Adrienne on November 15, 2015

4 Hello, doubts, a little of everything...

Hello, doubts, a little of everything...

Posted by Heidis_Husband on November 1, 2015

5 Has anyone tried Aldoxorubicin (INNO-206)?

Has anyone tried Aldoxorubicin (INNO-206)?

Posted by Trish on November 8, 2015


Help Us Help Others

Support Ben's Friends

Bens Friends

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit http://www.suicide.org/international-suicide-hotlines.html for the right phone numbers in your region,

SynovialSarcomaSurvivors is a peer-to-peer network

To get support, give support.

Blog Posts

Has anyone been through the genetically modified T-Cell trial?

Posted by jimK on April 30, 2014 at 7:00pm 55 Comments

I've met the blood and tumor qualifications and have an appointment at NIH on May 15th for additional testing to qualify for "A Pilot Study of Genetically Engineered NY-ESO-1 Specific (c259) T Cells in HLA-A2+ Patients With Synovial…


Gift Store


© 2015   Created by BensFriends.org   Powered by

Badges  |  Report an Issue  |  Terms of Service