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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.

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WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

New here and newly diagnosed with Synovial Sarcoma

Started by Starry1982 in General. Last reply by Elodie Espesset 8 hours ago. 8 Replies

Hi all-I was just diagnosed last month with Synovial Sarcoma.  I found a lump in my left arm in February after I had some pain in the area (Felt like a sore muscle). Finally, I was referred to an…Continue

DO YOU SHOP ONLINE, ESPECIALLY AT AMAZON? YOUR USUAL PURCHASES CAN HELP BEN'S FRIENDS AT NO COST TO YOU!

Started by Scott Orn in General on Monday. 0 Replies

Amazon is running a new promotion for Amazon Smile, their program that gives money back to Non Profits. For instance, BensFriends.org (my…Continue

Whole Lung Radiation for Lung Nodules

Started by Trish in General. Last reply by Elodie Espesset on Friday. 1 Reply

Hello, anyone had success with whole lung radiation to kill lung nodules?  Thank you in advance for your feedback.   TrishContinue

A little confused.

Started by BobbyB89 in General. Last reply by Guillou Aug 20. 7 Replies

Hey guys, I had ss in my head. It invaded my skull spine and neck but didn't spread. So many doctors told me my chances were slim. I did 37 radiations and 6 rounds of chemo. I stayed in the hospital…Continue

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Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

  • Share your story on "My Page" & personalize it to reflect you.
  • Upload pictures & videos easily.
  • Start a new discussion on "Forum" or contribute to existing discussions.
  • Welcome new members with a comment on their page.

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Latest Activity


Moderator
Elodie Espesset replied to Starry1982's discussion New here and newly diagnosed with Synovial Sarcoma
"Good way to go! Dana Farber has an excellent reputation for sarcoma :-) "
8 hours ago
Starry1982 replied to Starry1982's discussion New here and newly diagnosed with Synovial Sarcoma
"Hi Elodie,Yes it was sent on slides to SK -- I am thinking of getting a third opinion at Dana…"
yesterday

Moderator
Ben Munoz posted a blog post

Ben's Friends Monthly Newsletter - August 2014 Issue

Just the Stats: Communities: 35 Friends: 42,000+In this issueFeatured…See More
yesterday

Moderator
Elodie Espesset replied to Starry1982's discussion New here and newly diagnosed with Synovial Sarcoma
"Was the tumor sent on slides at SK? If that's so then it was send in 2D pieces while it was…"
yesterday
Scott Orn posted a discussion
Monday
Starry1982 replied to Starry1982's discussion New here and newly diagnosed with Synovial Sarcoma
"Thank you all for your support!   So, I had my second opinion at SK Thursday and their…"
Monday

Moderator
Elodie Espesset left a comment for liangxian
"Happy Birthday Liangxian! How are you doing?"
Monday

Moderator
Elodie Espesset left a comment for imaFighter91
"Happy Birthday Gina! We haven't heard from you for a while now. How are you doing?"
Monday

Top Content 

1 A little confused.

A little confused.

Posted by BobbyB89 on August 18, 2014

2 Would love some advice...

Would love some advice...

Posted by Sage on July 31, 2014

3 A quick question or 2 or 3 :)

A quick question or 2 or 3 :)

Posted by Kim on August 7, 2014

4 New here and newly diagnosed with Synovial Sarcoma

New here and newly diagnosed with Synovial Sarcoma

Posted by Starry1982 on August 19, 2014

5 New diagnosis of SS in the foot..... Suggestions on how to go about treatment?!!

New diagnosis of SS in the foot..... Suggestions on how to go about treatment?!!

Posted by floydBSN on July 23, 2014

 
 
 

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Blog Posts

Ben's Friends Monthly Newsletter - August 2014 Issue

Posted by Ben Munoz on August 26, 2014 at 9:14am 0 Comments

Just the Stats:

Communities: 35

Friends: 42,000+




In this issue…

Continue

TumorGraft to Test Drug Sensitivity?

Posted by Elodie Espesset on August 15, 2014 at 9:02am 0 Comments

The following article suggests benefits in testing a patient's tumor in an immunodeficient mice to predict drug response:

http://www.ncbi.nlm.nih.gov/pubmed/24705963

Here…

Continue

Bilateral Anterior Sternothoracotomy for Treatment of Lung Metastases in Children and Adolescents

Posted by Elodie Espesset on August 2, 2014 at 4:15am 0 Comments

Most of the time, surgeons operate one lung at a time. Still, operating both lungs at the same time does have some benefit and seems relatively safe:…

Continue

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