Welcome! You're not alone.
If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.
Got some QUESTIONS?
Check our FAQ PAGE.
Read More from our First-Time-User Guide.
Since content and usernames are searchable on this site, you may protect your anonymity by creating a unique username.
To change username, click here.
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Brought to you by Patient Power.
Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.
Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.
This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.
Despite its name, it seldom arises within a joint.
Is there anyone doing the Yondelis trial? If so how is it going for you/results?Also my husband just finished up with 18 rounds of radiation on his bones in the pelvic region. I understand that the…Continue
Hi all ,Thanks for adding me to this group, I have had a problem with my left ankle for over 2 years and after numerous MRI scans have recently had my world tipped upside down by synovial sarcoma ,…Continue
Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!
Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.
If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!
What you can do on Synovial Sarcoma Survivors:
* We only offer peer-to-peer support (patients, family and friends). Unless a person states otherwise, we are not doctors.
This site is brought to you by Ben's Friends Patient Communities.
Posted by Taz on February 10, 2015
Posted by happythoughts22 on February 2, 2015
Posted by Elodie Espesset on February 28, 2015
Posted by mlukeuk on February 19, 2015
Added by Elodie Espesset on February 5, 2015