Welcome! You're not alone.
If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.
Got some QUESTIONS?
Check our FAQ PAGE.
Read More from our First-Time-User Guide.
All of the material provided on this site, such as text, treatments, dosages, outcomes, charts, patient profiles, graphics, photographs, images, advice, messages, forum postings and any other material submitted on this site are for informational purposes only and are not a substitute for professional medical advice or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your health never disregard professional medical advice or delay in seeking it because of something you have read on this site.
Brought to you by Patient Power.
Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.
Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.
This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.
Despite its name, it seldom arises within a joint.
Hello Everyone,My daughter has numerous lung mets and was thinking of Dr Rolle in Germany for surgery. I would like to know his reputation/details of people's experience/traveling/cost/insurance…Continue
Will's resection took place in Jan 2013. A 10 cm circle, 4 cm deep, was removed from his left lower back, the right side had to be cut to close the left side, and his right leg was used as a donor…Continue
Hello, I am currently undergoing chemotherapy for some small lung nodules after having my primary SS removed from my foot (amputated). I am on Doxorubicin/Ifosfamide. Completed 1 of 6 cycles. (Very…Continue
Hi friends. Im new to the group but not new to synovial sarcoma. I am researching for my next step in this process and would like some insight on hospitals and doctors you would recommend. I just…Continue
Find out how you can better evaluate what option is best suited for your individual needs. Learn about the different types of health insurance and emerging trends in benefit design and affordability for individuals with rare diseases.
For more information about the Webinar, visit this link.
Read more about Global Genes,a 501(c)3 (non profit).
Keep in touch with friends. Get support and information while on the go. DOWNLOAD the Ben's Friends iPhone App now!
Be inspired by the helpful tips and amazing stories of patients with rare diseases. Get the e-book "We're in This Together: Stories & Tips from Patients with Rare Diseases" HERE.
If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!
What you can do on Synovial Sarcoma Survivors:
* We only offer peer-to-peer support (patients, family and friends). Unless a person states otherwise, we are not doctors.
This site is brought to you by Ben's Friends Patient Communities.
Posted by Michael Stangel on April 8, 2014
Posted by BobbyB89 on March 26, 2014
Posted by BobbyB89 on April 4, 2014
Posted by Noggin on April 4, 2014
Posted by linds on April 22, 2014
New member says:
Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to email@example.com.