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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.
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Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints. Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.
This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs. Despite its name, it seldom arises within a joint.
Hi Everyone,Dan found out on Friday that the Votrient isn't working for him anymore...well we don't think it is at least...our Dana Farber doctor wants to see the scans to be sure...he said sometimes…Continue
Votrient worked for 21 months. Can anyone suggest a clinical trial in the Chicago area? Or any t-Cell research? I need a couple more years to get my kids through collage.JimContinue
As many of you may remember or have read, my husband passed away on January 14, 2013 after a long and heroic battle with Synovial Sarcoma. It has taken me months to recover from the loss and I don't…Continue
We’re so proud to announce the release of the Ben’s Friends iPhone App!!!
Go to the App Store and download it now. To help others locate the app easier and enjoy online support, don't forget to give the app a 5-star rate review. Strong reviews like 5-star help bumps up Ben's Friends in the Apple's search result.
In the App, you can access all 35 support communities through the site and it’s perfect for staying in touch with your friends, info and support while on the go. In our beta tests, patient reported using it in doctor office waiting rooms and right after they were given a new diagnosis. The next feature in the App will be portable doctor reviews!
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