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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.


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Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.


New here and newly diagnosed with Synovial Sarcoma

Started by Starry1982 in General. Last reply by Emily Bleeker 22 hours ago. 9 Replies

Hi all-I was just diagnosed last month with Synovial Sarcoma.  I found a lump in my left arm in February after I had some pain in the area (Felt like a sore muscle). Finally, I was referred to an…Continue

Telemedicine Patient Education

Started by Ben Munoz in General on Sunday. 0 Replies

Hi, everyone.  Dr. Joan Leafman from AT Still medical school in Arizona asks to help spread the word about some research she is conducting.  The survey is about Telemedicine Sessions for Patient…Continue

A little confused.

Started by BobbyB89 in General. Last reply by Noggin on Saturday. 8 Replies

Hey guys, I had ss in my head. It invaded my skull spine and neck but didn't spread. So many doctors told me my chances were slim. I did 37 radiations and 6 rounds of chemo. I stayed in the hospital…Continue


Started by Scott Orn in General Aug 25. 0 Replies

Amazon is running a new promotion for Amazon Smile, their program that gives money back to Non Profits. For instance, BensFriends.org (my…Continue

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Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

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* We only offer peer-to-peer support (patients, family and friends). Unless a person states otherwise, we are not doctors.

This site is brought to you by Ben's Friends Patient Communities.

Latest Activity

Elodie Espesset left a comment for Sergio
"Happy Birthday Sergio :-)"
2 hours ago

Elodie Espesset left a comment for Grace
"Happy Birthday Grace :-)"
2 hours ago

Elodie Espesset left a comment for camiam
"Happy Birthday Camiam! Is your synovial sarcoma under control?"
2 hours ago

Elodie Espesset posted blog posts
2 hours ago

Elodie Espesset left a comment for Kyva
"Thanks Kylie for the update. I am glad you're still looking ahead with a positive outlook. I…"
2 hours ago
Emily Bleeker replied to Starry1982's discussion New here and newly diagnosed with Synovial Sarcoma
"Hi Starry! Your story sounds a lot like mine but my tumor was in my leg. Mine measured in at 4.5cm…"
22 hours ago

Ben Munoz posted a discussion

Telemedicine Patient Education

Hi, everyone.  Dr. Joan Leafman from AT Still medical school in Arizona asks to help spread the…See More

Elodie Espesset left a comment for Kyva
"Happy Birthday Kyva! Is your synovial sarcoma still under control?"

Top Content 

1 A little confused.

A little confused.

Posted by BobbyB89 on August 18, 2014

2 New here and newly diagnosed with Synovial Sarcoma

New here and newly diagnosed with Synovial Sarcoma

Posted by Starry1982 on August 19, 2014

3 A quick question or 2 or 3 :)

A quick question or 2 or 3 :)

Posted by Kim on August 7, 2014

4 Dendritic Vaccine Trial in Miami

Dendritic Vaccine Trial in Miami

Added by Elodie Espesset on August 18, 2014

5 Sad News

Sad News

Posted by Katie T on July 9, 2014


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Blog Posts

Perioperative Radiotherapy

Posted by Elodie Espesset on September 2, 2014 at 9:40am 0 Comments

According to this new publication, perioperative radiotherapy is associated with improved survival among patients with synovial sarcoma:…


September 2014 ESUN

Posted by Elodie Espesset on September 2, 2014 at 9:37am 0 Comments

The last sarcoma community newsletter for the Liddy Shriver Sarcoma Initiative is out:


Oncolytic Virus HSV1716 Trial

Posted by Elodie Espesset on August 29, 2014 at 9:30am 0 Comments

This is a trial in Ohio for patients aged 7 to 30 years old:


Ben's Friends Monthly Newsletter - August 2014 Issue

Posted by Ben Munoz on August 26, 2014 at 9:14am 0 Comments

Just the Stats:

Communities: 35

Friends: 42,000+

In this issue…



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