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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.

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About

 

WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

A little confused.

Started by BobbyB89 in General. Last reply by Noggin yesterday. 8 Replies

Hey guys, I had ss in my head. It invaded my skull spine and neck but didn't spread. So many doctors told me my chances were slim. I did 37 radiations and 6 rounds of chemo. I stayed in the hospital…Continue

New here and newly diagnosed with Synovial Sarcoma

Started by Starry1982 in General. Last reply by Elodie Espesset on Wednesday. 8 Replies

Hi all-I was just diagnosed last month with Synovial Sarcoma.  I found a lump in my left arm in February after I had some pain in the area (Felt like a sore muscle). Finally, I was referred to an…Continue

DO YOU SHOP ONLINE, ESPECIALLY AT AMAZON? YOUR USUAL PURCHASES CAN HELP BEN'S FRIENDS AT NO COST TO YOU!

Started by Scott Orn in General on Monday. 0 Replies

Amazon is running a new promotion for Amazon Smile, their program that gives money back to Non Profits. For instance, BensFriends.org (my…Continue

Whole Lung Radiation for Lung Nodules

Started by Trish in General. Last reply by Elodie Espesset Aug 22. 1 Reply

Hello, anyone had success with whole lung radiation to kill lung nodules?  Thank you in advance for your feedback.   TrishContinue

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Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

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Latest Activity

Noggin replied to BobbyB89's discussion A little confused.
"We just take good news and enjoy it for as long as we can. Go to Europe and have a blast. It's…"
yesterday

Moderator
Elodie Espesset left a comment for hagibes
"Happy Birthday Hagibes :-)"
yesterday

Moderator
Elodie Espesset posted a blog post

Oncolytic Virus HSV1716 Trial

This is a trial in Ohio for patients aged 7 to 30 years old:…See More
yesterday

Moderator
Elodie Espesset left a comment for Ede
"Happy Birthday Ede :-)"
Thursday

Moderator
Elodie Espesset replied to Starry1982's discussion New here and newly diagnosed with Synovial Sarcoma
"Good way to go! Dana Farber has an excellent reputation for sarcoma :-) "
Wednesday
Starry1982 replied to Starry1982's discussion New here and newly diagnosed with Synovial Sarcoma
"Hi Elodie,Yes it was sent on slides to SK -- I am thinking of getting a third opinion at Dana…"
Tuesday

Moderator
Ben Munoz posted a blog post

Ben's Friends Monthly Newsletter - August 2014 Issue

Just the Stats: Communities: 35 Friends: 42,000+In this issueFeatured…See More
Tuesday

Moderator
Elodie Espesset replied to Starry1982's discussion New here and newly diagnosed with Synovial Sarcoma
"Was the tumor sent on slides at SK? If that's so then it was send in 2D pieces while it was…"
Tuesday

Top Content 

1 A little confused.

A little confused.

Posted by BobbyB89 on August 18, 2014

2 A quick question or 2 or 3 :)

A quick question or 2 or 3 :)

Posted by Kim on August 7, 2014

3 New here and newly diagnosed with Synovial Sarcoma

New here and newly diagnosed with Synovial Sarcoma

Posted by Starry1982 on August 19, 2014

4 Dendritic Vaccine Trial in Miami

Dendritic Vaccine Trial in Miami

Added by Elodie Espesset on August 18, 2014

5 Sad News

Sad News

Posted by Katie T on July 9, 2014

 
 
 

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Blog Posts

Oncolytic Virus HSV1716 Trial

Posted by Elodie Espesset on August 29, 2014 at 9:30am 0 Comments

This is a trial in Ohio for patients aged 7 to 30 years old:

https://clinicaltrials.gov/ct2/show/NCT00931931

Ben's Friends Monthly Newsletter - August 2014 Issue

Posted by Ben Munoz on August 26, 2014 at 9:14am 0 Comments

Just the Stats:

Communities: 35

Friends: 42,000+




In this issue…

Continue

TumorGraft to Test Drug Sensitivity?

Posted by Elodie Espesset on August 15, 2014 at 9:02am 0 Comments

The following article suggests benefits in testing a patient's tumor in an immunodeficient mice to predict drug response:

http://www.ncbi.nlm.nih.gov/pubmed/24705963

Here…

Continue

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