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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.

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About

 

WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

Yondelis

Started by jsinder in Side Effects of Treatment. Last reply by Elodie Espesset 21 hours ago. 7 Replies

Is there anyone doing the Yondelis trial? If so how is it going for you/results?Also my husband just finished up with 18 rounds of radiation on his bones in the pelvic region. I understand that the…Continue

Bk amputation

Started by Moopy in Side Effects of Treatment. Last reply by Elodie Espesset yesterday. 14 Replies

Hi all ,Thanks for adding me to this group, I have had a problem with my left ankle for over 2 years and after numerous MRI scans have recently had my world tipped upside down by synovial sarcoma ,…Continue

Sarcoma Foundation of America Patient Educational Conference

Started by Elodie Espesset in Advocacy. Last reply by Caelan's grandma on Saturday. 2 Replies

Does anybody intend to attend the SFA Patient Educational Conference this year? It will be on May 2nd 2015:…Continue

Clinical Trial with Clostridium Novyi-NT Spores

Started by Elodie Espesset in Clinical Trials and Research Updates. Last reply by Elodie Espesset on Saturday. 2 Replies

Has anybody joined the following trial?http://clinicaltrials.gov/show/NCT01924689An patient with a different type of soft tissue tumor…Continue

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Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

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Latest Activity

Kelly posted a status
"Chemo is done. Scan on Wednesday and Port removed in 2 weeks. Still waiting for a trial or immunotherapy. Ugh."
15 hours ago

Moderator
Elodie Espesset left a comment for Meredith R.
"Happy Birthday Meredith! Are you ready to celebrate another cancer free anniversary?"
21 hours ago

Moderator
Elodie Espesset left a comment for JOE'S MOM
"Happy Birthday Joe's mom! How is Joe doing so far?"
21 hours ago

Moderator
Elodie Espesset replied to jsinder's discussion Yondelis
"Oh Gosh, like you don't have enough to worry about :-( Some family syndromes make it more…"
21 hours ago
jsinder replied to jsinder's discussion Yondelis
"My husband is doing very good.  We had our first appointment at MD Anderson last week. …"
22 hours ago

Moderator
Elodie Espesset posted a blog post

Towards A Better Prosthetic Ankle

I could use a smarter prosthetic ankle for hiking but I am wondering about all the wires hanging…See More
yesterday

Moderator
dancermom and sruthi are now friends
yesterday

Moderator
Elodie Espesset replied to Moopy's discussion Bk amputation
"Sruthi, no evidence of metastasis doesn't mean cancer cells did not spread elsewhere. It just…"
yesterday

Top Content 

1 Chemo taxal and gemar

Chemo taxal and gemar

Posted by Taz on February 10, 2015

2 How to get a second opinion for treatment options?

How to get a second opinion for treatment options?

Posted by happythoughts22 on February 2, 2015

3 Sarcoma Foundation of America Patient Educational Conference

Sarcoma Foundation of America Patient Educational Conference

Posted by Elodie Espesset on February 28, 2015

4 Radiofrequency Ablation

Radiofrequency Ablation

Posted by mlukeuk on February 19, 2015

5 Oligometastasis

Oligometastasis

Added by Elodie Espesset on February 5, 2015

 
 
 

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Blog Posts

Towards A Better Prosthetic Ankle

Posted by Elodie Espesset on March 1, 2015 at 11:16am 0 Comments

I could use a smarter prosthetic ankle for hiking but I am wondering about all the wires hanging around...…

Continue

Nuclear Spin Hyperpolarisation, a New Imaging Method?

Posted by Elodie Espesset on February 27, 2015 at 9:39am 0 Comments

Could a new imaging method tell whether a drug is working on a tumor within a few days? That's apparently the goal behind nuclear spin hyperpolarisation:…

Continue

Influence of TGF-β on Cancer Stem Cells Fate

Posted by Elodie Espesset on February 27, 2015 at 9:19am 0 Comments

According to a new skin cancer study, the cancer stem cells which receive a strong TGF-β signal, move and slowly start metastases while the ones which receive no signal divide rapidly but stay where they are:…

Continue

Votrient as Maintenance Therapy - Clinical Trial

Posted by Elodie Espesset on February 24, 2015 at 10:44am 0 Comments

https://clinicaltrials.gov/ct2/show/NCT02367651

They can count me as placebo if they want...

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