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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.

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WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

Got CT scan reports of my MOM , synovial sarcoma got cured

Started by krishna in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Elodie Espesset 5 hours ago. 8 Replies

Hi , Told na today we will get results.Finally I am feeling happy , as Doc confirmed that tumor has been cured.Thing is we went for…Continue

New diagnosis of SS in the foot..... Suggestions on how to go about treatment?!!

Started by floydBSN in General. Last reply by floydBSN 5 hours ago. 8 Replies

My sister was diagnosed with SS in her foot less than 1 year ago; She had surgery to remove it ,as well as radiation; however it has come back same foot, but different area. She has only gotten one…Continue

Sean Vitka & Blue Redefined Patient Organization Sponsors Ben's Friends

Started by Scott Orn in General. Last reply by Elodie Espesset on Tuesday. 1 Reply

Thrilled to announce that Ben's Friends received a $1,500 donation from Sean Vitka and Blue Redefined (http://www.blueredefined.org/), a non profit patient…Continue

Doctors Recommendations

Started by Elodie Espesset in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Ernesto Fonseca Jul 16. 15 Replies

Do you have a sarcoma oncologist, surgeon, radiologist, pathologist that you love? Please share. We would like to create a list from everyone's recommendations :-)Continue

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Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

  • Share your story on "My Page" & personalize it to reflect you.
  • Upload pictures & videos easily.
  • Start a new discussion on "Forum" or contribute to existing discussions.
  • Welcome new members with a comment on their page.

* We only offer peer-to-peer support (patients, family and friends). Unless a person states otherwise, we are not doctors.

This site is brought to you by Ben's Friends Patient Communities.

Latest Activity


Moderator
Elodie Espesset posted a blog post

Young Adult Program in Boston

"The Young Adult Program at Dana-Farber (YAP@DFCI) is part of an international initiative to…See More
5 hours ago

Moderator
Elodie Espesset replied to krishna's discussion Got CT scan reports of my MOM , synovial sarcoma got cured
"Yogi makes a tea that contains kava extract. I don't know if it has the active ingredient in…"
5 hours ago
floydBSN replied to floydBSN's discussion New diagnosis of SS in the foot..... Suggestions on how to go about treatment?!!
"Thanks elodie!"
5 hours ago

Moderator
Elodie Espesset replied to floydBSN's discussion New diagnosis of SS in the foot..... Suggestions on how to go about treatment?!!
"Something she should take into account when she makes her decision is the fact that taking care of…"
5 hours ago

Moderator
Elodie Espesset and DeborahBP are now friends
6 hours ago
George replied to krishna's discussion Got CT scan reports of my MOM , synovial sarcoma got cured
"Glad this was effective for your mom. I have been researching impact of diet on sarcoma, largely…"
8 hours ago
dancermom replied to krishna's discussion Got CT scan reports of my MOM , synovial sarcoma got cured
"Before making any major decisions, you may wish to review some information to learn more about…"
yesterday
Scott Orn left a comment for DeborahBP
"Hi Deborah  Huge welcome to the community! This is a great place! One tip, if you have…"
yesterday

Top Content 

1 Sad News

Sad News

Posted by Katie T on July 9, 2014

2 New diagnosis of SS in the foot..... Suggestions on how to go about treatment?!!

New diagnosis of SS in the foot..... Suggestions on how to go about treatment?!!

Posted by floydBSN on July 23, 2014

3 Got CT scan reports of my MOM , synovial sarcoma got cured

Got CT scan reports of my MOM , synovial sarcoma got cured

Posted by krishna on March 18, 2014

4 a transition

a transition

Posted by Bruce_S on July 4, 2014

5 Reading material while on Chemo...

Reading material while on Chemo...

Posted by mammoth on July 14, 2014

 
 
 

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Blog Posts

Young Adult Program in Boston

Posted by Elodie Espesset on July 25, 2014 at 10:12am 0 Comments

"The Young Adult Program at Dana-Farber (YAP@DFCI) is part of an international initiative to recognize and address the unique circumstances related to lifestyle, work, school, family life, and emotional development that young adults face when…

Continue

2014 International Sarcoma Awareness Week

Posted by Elodie Espesset on July 16, 2014 at 4:32am 0 Comments

The Amschwand Sarcoma Cancer Foundation is organizing a sarcoma awareness walk on July 26th:

http://www.sarcomacancer.org/

My daughters Synovial Sarcoma is in her belly

Posted by Brenda Miele on July 12, 2014 at 8:02am 1 Comment

I've come to realize that there are no cases of children (my daughter is 10) that have this specific cancer where it has shown itself in her. Her scans and biopsy told the Doctors several things, first the type of cancer. The mass that developed is… Continue

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