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Welcome! You're not alone.

If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.

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About

 

WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

My brother passed away last week.

Started by happythoughts22 in Lost Battles. Last reply by George 3 hours ago. 7 Replies

Hello again, everyone. I've posted a few times about my brother and his fight against synovial sarcoma. I'm sorry to say he died last week after fighting for two years. He was 26. His final days were…Continue

Newbie!

Started by Cathy in Newly Diagnosed. Last reply by sruthi 11 hours ago. 6 Replies

Hello,Just want to introduce myself my name is Cathy I'm 38 years old from Brampton, Ontario Canada (Toronto).I was just diagnosed with Synovial Sarcoma in March.  It took at least 2 years i was…Continue

Cancer Treatment Centers of America

Started by Trish in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by Trish on Friday. 3 Replies

Hi - has anyone received treatment or a second opinion from the Cancer Treatment Centers of America.  Can you please share your experience? Thank you.  All the best.  TrishContinue

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Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

  • Share your story on "My Page" & personalize it to reflect you.
  • Upload pictures & videos easily.
  • Start a new discussion on "Forum" or contribute to existing discussions.
  • Welcome new members with a comment on their page.

* We only offer peer-to-peer support (patients, family and friends). Unless a person states otherwise, we are not doctors.

This site is brought to you by Ben's Friends Patient Communities.

Latest Activity

George replied to happythoughts22's discussion My brother passed away last week.
"I have been thinking of you, your brother and your family since your post from NIH I am sorry of…"
3 hours ago

Moderator
Elodie Espesset left a comment for Kansasmom
"Happy Birthday Kansasmom! Are you still in remission?"
8 hours ago

Moderator
Elodie Espesset left a comment for Yenessa
"Just so you know, I've had 6 recurrences in the lungs and 6 lung surgeries, since 2008.…"
8 hours ago

Moderator
Elodie Espesset left a comment for Doglover
"Welcome Doglover! Are you still doing treatments for your multiple myeloma or this has been taken…"
8 hours ago
Profile IconDoglover and Yenessa joined Synovial Sarcoma - Online Support Group
8 hours ago
sruthi replied to Cathy's discussion Newbie!
"Mine is also the same type  , I had a wide excision surgery and then radiation for 6 weeks ,…"
11 hours ago
sruthi left a comment for Hunny Kapoor
"hai. Sad to hear this , but be positive , I completed my treatement , and my second followup is in…"
11 hours ago
sruthi and Hunny Kapoor are now friends
11 hours ago

Top Content 

1 Newly Diagnosed and Scared!

Newly Diagnosed and Scared!

Posted by Devon on March 31, 2015

2 Amputation of left arm next week

Amputation of left arm next week

Posted by Johnboy Esq on March 24, 2015

3 Vaccine Trial   LV305

Vaccine Trial LV305

Posted by mary on April 14, 2015

4 My brother passed away last week.

My brother passed away last week.

Posted by happythoughts22 on April 6, 2015

5 Newbie!

Newbie!

Posted by Cathy on April 7, 2015

 
 
 

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Blog Posts

How Great is My God!

Posted by Devon on April 2, 2015 at 6:11pm 7 Comments

WOW! Less than 24 hours after deciding that CHOP is where I want to be treated they call us with glorious news. 



They met as an entire team today and have decided that they want to delay chemotherapy!! They are going to do more tests and…

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Local Fundraiser for Ben's Friends

Posted by Scott Orn on March 22, 2015 at 10:34am 0 Comments

I wanted to share some good news from a local fundraiser we did last night in San Francisco. Some friends of mine wanted to support Ben's Friends so they held a "bar night get together for Ben's Friends."

It was a big success as we…

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Immunotherapy

Posted by Kelly on March 17, 2015 at 6:28pm 0 Comments

Has anyone participated in an immunotherapy trial with Pembrolizumab?

Hypoxia, Glucose Deprivation, HIGD1A and Tumor dormancy

Posted by Elodie Espesset on March 4, 2015 at 10:47am 0 Comments

According to a new study, Hypoxia-Inducible Gene Domain Family Member 1A (HIGD1A) may be instrumental in cancer cells ability to survive hypoxia and glucose deprivation:…

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