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If your family has been affected by Synovial Sarcoma, consider Synovial Sarcoma Survivors Network your second home.

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WHAT IS SYNOVIAL SARCOMA?

Synovial sarcoma is a malignant tumor of the soft tissues, usually around joints.

Under the microscope the tumor resembles synovial tissue (the lining tissue of joints). Synovial tissue is found around the tendons (bands of fiber that connect muscle to bone), and can form bursa (fluid filled cushioning pouches or sacs found in spaces between tendons, ligaments and bones) found in the area of joints.

This condition tends to occur in adolescents and young adults and affects more males than females. The most common location of origin is the thigh near the knee, but synovial sarcoma can also occur near other joints, mainly in the arms and legs.

Despite its name, it seldom arises within a joint.

Forum

lungs and bones

Started by jsinder in General. Last reply by glori 18 hours ago. 8 Replies

Is there on here that is getting treatment for SS in your bones and lungs?

New diagnosis and little information

Started by dajebriza in General. Last reply by Sonnut 20 hours ago. 3 Replies

Thank goodness for this site.  My daughter was recently diagnosed.  Two weeks ago.  There is so little information right now we are just waiting.  Luckily she is close to a sarcoma center in…Continue

Blood transfusions

Started by Sonnut in General 20 hours ago. 0 Replies

So,  I survived round four of AIM, but needed two units of blood. I can't believe the difference in how I feel! So, how long does this feel good last? My husband said he's relieved to see me much…Continue

Round 1 of chemo

Started by jsinder in General. Last reply by Sonnut 21 hours ago. 13 Replies

My husband's first round chemotherapy is AIM. The doctor had us do a chest x-ray after this first round and it shows that the nodules in his lungs have grown slightly.... does this mean that this…Continue

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Welcome To SynovialSarcomaSurvivors.org

If you or a loved one is affected by Synovial Sarcoma, this site is for you. Here you will find support, information, and most importantly a place to connect!

What you can do on Synovial Sarcoma Survivors:

  • Share your story on "My Page" & personalize it to reflect you.
  • Upload pictures & videos easily.
  • Start a new discussion on "Forum" or contribute to existing discussions.
  • Welcome new members with a comment on their page.

* We only offer peer-to-peer support (patients, family and friends). Unless a person states otherwise, we are not doctors.

This site is brought to you by Ben's Friends Patient Communities.

Latest Activity

glori replied to jsinder's discussion lungs and bones
"now we are in trouble, cause water level raised in lungs... She already have tried: 6 cycles of…"
18 hours ago
Scott Orn left a comment for dajebriza
"Big welcome Dajebriza! One tip, if you have specific questions it's best to start a New…"
20 hours ago
Sonnut replied to dajebriza's discussion New diagnosis and little information
"From what I hear, unfortunately that's common. My tumors are in my lungs. I'm hoping a…"
20 hours ago
Sonnut posted a discussion

Blood transfusions

So,  I survived round four of AIM, but needed two units of blood. I can't believe the difference in…See More
20 hours ago
dajebriza replied to dajebriza's discussion New diagnosis and little information
"Thank you.  She is 19 and it was located on her foot.  Removed only after it started to…"
21 hours ago
Sonnut replied to dajebriza's discussion New diagnosis and little information
"Sorry to hear about your daughter,  the good news is that she's had the tumor removed.…"
21 hours ago
Sonnut replied to jsinder's discussion Round 1 of chemo
"What is your husband's chemo regimen?  Does he get chemo every week,  21 days,…"
21 hours ago
dajebriza posted a discussion

New diagnosis and little information

Thank goodness for this site.  My daughter was recently diagnosed.  Two weeks ago.  There is so…See More
22 hours ago

Top Content 

1 Round 1 of chemo

Round 1 of chemo

Posted by jsinder on October 14, 2014

2 Stomach and digestive issues after chemo

Stomach and digestive issues after chemo

Posted by Aperez on September 30, 2014

3 New here, new to SS

New here, new to SS

Posted by Sonnut on October 5, 2014

4 Next Treatment?

Next Treatment?

Posted by Trish on October 11, 2014

5 Immunotherapy for SS in lungs

Immunotherapy for SS in lungs

Posted by mary on October 16, 2014

 
 
 

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Blog Posts

Combining Radiotherapy With Targeted Therapy

Posted by Elodie Espesset on October 21, 2014 at 12:48pm 0 Comments

The following publication explains the potential benefits of combining radiotherapy with targeted therapy:…

Continue

EPZ-6438 (E7438)

Posted by Elodie Espesset on October 18, 2014 at 2:00pm 0 Comments

 Epizyme just presented results of a pre-clinical study of its EZH2 inhibitor EPZ-6438 in models of synovial sarcoma:…

Continue

Pneumothorax and Votrient

Posted by Elodie Espesset on October 11, 2014 at 10:07am 0 Comments

A new study from the Netherlands discusses the incidence of pneumothorax in patients with sarcoma lung mets who are receiving votrient:…

Continue

A New Lab Born from Research on Synovial Sarcoma

Posted by Elodie Espesset on October 3, 2014 at 10:07am 0 Comments

This is quite exciting and hopefully it will bring us better therapies:…

Continue

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